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- Conversations in Ethics and Neurodevelopmental Disorders
- Wellness in Early Onset Familial Alzheimer Disease
•• Prize winner of the 2014 CIHR Institute of Human Development, Child and Youth Health Talks Video Competition ••
Meet Dr. Michael Fehlings, a Neurosurgeon, Scientist and Professor at the University of Toronto. Here, in a discussion with Dr. Judy Illes, he discusses the potential for stem cells in the treatment of cerebral palsy and the associated ethical issues.
Meet Dr. Darcy Fehlings, a Developmental Pediatrician at the University of Toronto and Holland Bloorview Kids Rehabilitation Hospital and Dr. Adam Kirton, a Pediatric Neurologist at Alberta Children’s Hospital and University of Calgary. Here, in conversation with Dr. Judy Illes they discuss alternative therapies, health information available on the internet and how families can engage with research.
Meet Dr. James Reynolds, a Professor and Researcher at Queens University. Here, in a discussion with Dr. Emily Bell, he discusses the potential for using biomarkers to screen for Fetal Alcohol Spectrum Disorder, the associated risks and benefits of this and ethical issues.
Meet Dr. Eric Racine, Director of the Neuroethics Research Unit, Institut de recherches cliniques de Montreal. Here, in a conversation with Dr. Nina di Pietro, he discusses ethical issues for adolescents living with cerebral palsy, and their transition to adult services.
Rencontrez le Dr Eric Racine , Director of the Neuroethics Research Unit, Institut de recherches cliniques de Montreal. Ici, dans une conversation avec le Dr Nina di Pietro , il aborde les questions éthiques pour les adolescents avec la paralysie cérébrale , et leur transition vers les services pour adultes.
Alzheimer Disease is a complex syndrome with cognitive changes, decline in function, and changes in behavior. Usually the cause isn’t known but in some cases a gene can be identified in some families with early onset disease. This is EOFAD or Early Onset Familial Alzheimer Disease.
In the First Nations family with whom we have been working, we identified a unique presenilin 1 gene. Symptoms usually start by the late 50’s and many affected persons live into their 70’s with progressive symptoms. There is a large family tree and we estimate that 100 relatives are currently at risk.
There is no known cure for EOFAD, but we identified a great need for knowledge and understanding to mitigate stigma and bring meaningful resources to the community. This project Wellness in Alzheimer Disease, conducted in the context of cross cultural neuroethics, benefited from a deep partnership with the Tahltan Nation, and was supported by funding from several sources. We are grateful to all who contributed so generously.