Invitation to Participate in Interviews
We are seeking English-speaking adolescents between the ages of 13 and 28 who have lost a brother or sister to neuroblastoma to participate in a 30-minute interview over the telephone, in person, or by Zoom as part of a research project.
The purpose of this interview is to explore the experience of adolescent siblings throughout their brother or sisters’ palliative care journey with the hope of developing a better understanding of their experience. Researchers will use this understanding to help the medical community address the concerns of adolescents throughout their sibling’s diagnosis. To participate in or learn more about this study, please contact Katherine Brown, Neuroethics Canada, firstname.lastname@example.org or 604- 827-3630
Funding for this study is provided by the James Fund for Neuroblastoma Research at SickKids Hospital in Toronto.
Principal Investigator: Judy Illes, CM, PhD, Canada Research Chair in Neuroethics, Professor, Division of Neurology, University of British Columbia, Phone: 604-822-0746
Principal Investigator BC Children’s Hospital: Dr. Rebecca Deyell, MD, Pediatric Oncologist and Clinician Investigator, Division of Hematology/Oncology/ BMT, B.C. Children’s Hospital and Child and Family Research Institute, Phone: 604-875-2000 (ext. 4815)
Collaborator: Tim Oberlander, MD, FRCPC, Professor, Department of Pediatrics, University of British Columbia, BC Children’s Hospital and BC Women’s Hospital & Health Centre Phone: 604-875-3200
Co-Investigator: Harold Siden, MD, MHSc, Professor, Division of General Pediatrics, Department of Pediatrics, University of British Columbia; BC Children’s Hospital and BC Women’s Hospital & Health, Medical Director, Canuck Place Hospice. Phone 604 875 2776
Study contact and lead for informed consent process: Katherine Brown, MSc student, Project Lead, Neuroethics Canada, University of British Columbia, Phone: 604-827-3630, e-mail: email@example.com