Publications

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Recent Publications (by year):

2024
  • Manohara, V., Nuechterlein, A., Barretto, T. A., & Illes, J., Priorities and opportunities for advocacy in SCI: An international web-based review. The Journal of Spinal Cord Medicine, 2024. 1–9. https://doi.org/10.1080/10790268.2024.2369736 (Link)
  • Shen, F.X., Wolf, S.W., Lawrenz, F., Comeau, D.S., Dzirasa, K., Evans, B.J., Fair, D., Farah, M.J., Han, S.D., Illes, J., Jackson, J.D., Klein, E., Rommelfanger, K.S., Rosen, M.S., Torres, E., Tuite, P., Vaughan, J.T., Garwood, M. Ethical, legal, and policy challenges in field-based neuroimaging research using emerging portable MRI technologies: Guidance for investigators and for oversight. Journal of the Law and Biosciences, 2024. (Link)
  • Illes, J., Hannan, A.J., Synergies of translational and transnational neuroethics for global neuroscience, AJoB-Neuroscience, 2023, 14(4) 400-401. (Featured in Neurology Today, American Academy of Neurology, 4 January 2024).
  • Nuechterlein, A., Olmos Pérez, A., Rossi, F., Swift, J., Townson, A., Illes, J. Toward a person-centered framework for autonomy in spinal cord injury research and rehabilitation. PM&R: The Journal of Injury, Function and Rehabilitation, 2024, 1-8. https://doi.org/10.1002/pmrj.13146 (PDF)
  • Illes, J., McDonald, P.J., Ibrahim, G.M., Connolly, M.B., Naftel, R.B., Bacani, M., Nuechterlein, A., Go, S.P., Roduit, J., Seizing the moment: Communicating ethics, decisions, and neurotechnological approaches to pediatric drug-resistant epilepsy, Frontiers in Communication, 2024, 9, https://doi.org/10.3389/fcomm.2024.1267065.
  • Barretto, T.A., Tetzlaff, W., Illes, J., Ethics and accountability for clinical trials, Nature Spinal Cord, 2024. https://doi.org/10.1038/s41393-024-00980-z. (PDF)
  • Grier, A., Illes, J., Ethics and ecosystems: The impact of environmental change from fracking on brain and mental health, Neuroethics, 2024, 17:12, https://doi.org/10.1007/s12152-024-09546-5.
  • Sargent. S., Illes, J. Health aspirations for transcranial direct current stimulation (tDCS), Neuroethics, 2024, 17(1). https://doi.org/10.1007/s12152-024-09547-4

2023
  • Illes, J. (2023). Reflecting on the Past and Future of Neuroethics: The Brain on a Pedestal. AJOB Neuroscience. (Link)
  • Lipsman, N., McDonald, P.J., Illes, J. (Eds.) (2023), Special Issue on Neuromodulation, Canadian Journal of Neurological Sciences.
  • Lewis, A., Young, M.J., Rohaut, B., Jox, R.J., Claassen, J., Creutzfeldt, C.J., Illes, J., Kirschen, M., Trevick, S., Fins, J.J., and The Curing Coma Campaign and its Contributing Members (2023). Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness. Neurocrit Care. (Link)
  • Nuechterlein, A., Feng, L., Yehia, A., Illes, J. (2023). Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury. Spinal Cord. (PDF)
  • Nadler, R. (2023). Antitrust as a Guardrail for Socially Responsible Neurotechnology Design. The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques. (Link)
  • Nuechterlein, A., Rotenberg, A., LeDue, J., Pavlidis, P., Illes, J. (2023). Open science in play and in tension with patent protections. Journal of Law and the Biosciences. (Link)
  • Schaffrick, M., Perreault, M.L., Harding, L., Illes, J. (2023). Recruitment and Engagement of Indigenous Peoples in Brain-Related Health Research. Neuroethics. (Link)
  • Nuechterlein, A., Barretto, T., Yehia, A., Illes, J. (2023). Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review. Research Integrity and Peer Review. (PDF)
  • Illes, J. (2023). Local engagement and reciprocity at the frontiers of neuroscience. In: L. Bitsch and A. Salles [Eds.]
    Ethics and Society in Brain Research, Human Brain Project.
  • Bassil, K., Illes, J. (2023). Introduction: Neurodevelopment in focus for neuroethics and bioethics, Developments
    in Neuroethics and Bioethics, [J. Illes, Ed.], Vol. 6, Elsevier.

2022
  • Illes, J. (2022). Foreword: Neuroscience, ethics, and law: The past foretells the present and future, in M. Hervia[Ed.], Neuroethics and the Law, Developments in Neuroethics and Bioethics [J. Illes, Ed.], vol. 4, Elsevier Press.
  • Lawson, A., Lee, C., & Illes, J. (2022). Toward Health Equity in Neuroscience: Current Resources and Considerations for Culturally Broadening Educational Curricula. Journal Of Neurology Research. (Link)
  • Perreault, M., Gabel, C., King, M., Mushquash, C., Ménard, C., Young, J., De Koninck, Y., Illes, J. (2022). An Indigenous lens on priorities for the Canadian Brain Research Strategy. CJNS. (Link)
  • Gunning, M., Rotenberg, A., Anderson, J. et al. (2022). Neither the "Devil's Lettuce" nor a "Miracle Cure:" The Use of Medical Cannabis in the Care of Children and Youth. Neuroethics. (Link)
  • Gunning, M., Rotenberg, A., Anderson, J., Balneaves, L.G., Brace, T., Crooks, B., Hall, W., Kelly, L.E. (2022). Clinician views and ethics priorities for authorizing medical cannabis in the care of youth: A qualitative Study. CMAJ Open. (Link)
  • Chiong, W., Tolchin, B., Bonnie, R.J., Busl, K.M., Cruz-Flores, S., Epstein, L.G., Greene, E.P., Illes, J., Kesselheim, A.S., Kirschen, M.P., Larriviere, D.G., Mantri, S., Rubin, M., Stern, B.J. Taylor, L.P., Ethical concerns raised by the FDA’s approval of aducanumab for Alzheimer’s disease, with recommendations for informed consent. Neurology. In Press.
  • Gilbert F, Viana J.…. Illes J, Invasive experimental brain surgery for dementia: Ethical shifts in clinical research practices? Bioethics. (Link)
  • Harding L, Marra C, Manohara, V, & Illes J. (2022). Ways of Knowing of the Brain and Mind: A Scoping Review of the Literature About Global Indigenous Perspectives. Journal Of Neurology Research. (Link)
  • Tindale LC, Chiu D, Minielly N, Hrincu V, Talhouk A and Illes J (2022) Wearable Biosensors in the Workplace: Perceptions and Perspectives. Front. Digit. Health. (Link)
  • Apantaku, G.O., McDonald, P.J., ... Illes, J. (2022). Clinician preferences for neurotechnologies in pediatric drug-resistant epilepsy: A discrete choice experiment. Epilepsia. (Link)
  • Alam, A., Parfyonov, M., ... Illes, J. (2022). Targeted Whole Exome Sequencing in Children With Early-Onset Epilepsy: Parent Experiences. Journal of Child Neurology. (Link)
  • The Neuroethics of Architecture. Illes J & Huang C. Developments in Neuroethics and Bioethics. In Press.
  • Nir Lipsman, Patrick J. McDonald & Judy Illes (2022) Perceptions of Invasiveness: A Moving Target for Neuromodulation. AJOB Neuroscience. (Link)
  • Boyle Q, Illes J, Simonetto D, van Donkelaar P. (2022). Ethicolegal considerations of screening for brain injury in women who have experience intimate partner violence. Journal of Law and the Biosciences. (Link)

2021
  • Randhawa, J., Hrazdil, C., McDonald, P.J., Illes, J. A strategic and principled ethics approach to epilepsy monitoring unit triage. Journal of Medical Ethics, 2021, 0:1–6. (PDF)
  • Apakantu, G., Aguiar, M., Kaal, J.J., McDonald, P.J., Connolly, M., Hrincu, V., Illes, J.*, Harrison, M.*, A formative qualitative research approach to understanding attributes that influence physician and caregiver decisions about neurotechnology for pediatric drug resistant epilepsy. The Patient - Patient-Centered Outcomes Research, 2021. (PDF)
  • Chandler, J., Van der Loos, K.I., Boehnke, S., Buchman, D.Z., Beaudry, J.S., Illes, J., Building communication neurotechnology for high stakes communications, Nature Reviews Neuroscience, 2021. (PDF)
  • Gaudry, K.S., Ayaz, H., Bedows, A., Celnik, P., Eagleman, D., Grover, P., Illes, J., Rao, R.P.N., Robinson, J.T., Thyagarajan, K., and The Working Group on Brain-Interfacing Devices in 2040, Projections and the potential societal impact of the future of neurotechnologies, Frontiers in Neuroscience, 2021. (Link)
  • Chandler, J.A., … Illes, J. et al. A look at international legal approaches to neurosurgery for psychiatric disorders (NPD), Frontiers in Psychiatry, 2021, 14: 588458. doi: 10.3389/fnhum.2020.588458. (PDF).
  • Gunning, M., Illes, J. Coverage of medical cannabis by Canadian news media: Ethics, access, and policy. International Journal of Drug Policy, 2021, 97(103361): 1-8. doi.org/10.1016/j.drugpo.2021.103361. (PDF)
  • Harding, L., Marra, C.J., Illes, J., Establishing a comprehensive search strategy for Indigenous health literature reviews. BMC Systematic Reviews, 2021, 36:115. doi: 10.1186/s13643-021-01664-y. (PDF)
  • Udwadia, F., Hrincu, V.M., Connolly, M.B., McDonald, P.J., Illes, J., Youth weigh in: Views on advanced neurotechnology for drug resistant epilepsy. Journal of Child Neurology. 2021, 36(2):128-132. doi: 10.1177/0883073820957810.(PDF).
  • Beauvais, J.S., Knoppers, B.M., Illes, J. A marathon, not a sprint – Neuroimaging, open science and ethics, NeuroImage, 2021, 236:118041, 1-7 (PDF).
  • Ménard, C., Siddiqui, T.J., Sargin, D., De Koninck, Y., Illes, J. The Canadian Brain Research Strategy: A focus on early career investigators, Canadian Journal of Neurological Sciences, 2021, 00:  Can J Neurol Sci. 2021; 00: 1-3. (PDF).
  • Pfotenhauer, S., Winnikopf, D.,  Marchant, G. Frahm, N.M., Benrimoh, D., Illes, J.  Mobilizing the private sector for responsible innovation in neurotechnology (and beyond), Nature Biotechnology, 7 June 2021 (PDF).
  • Hrincu, V.M., Harrison, M., Connolly, M.B., McDonald, P.J., Naftel, R., Ibrahim, G., Chiong, W., Illes, J. Choice and trade-offs: Parent decision-making for neurotechnologies for pediatric drug resistant epilepsy, Journal of Child Neurology, 2021, 36(3): 222-229. (PDF)

2020
  • Udwadia, F.R. and Illes, J., An ethicolegal analysis of involuntary treatment for opioid use disorders. Journal of Law, Medicine and Ethics. doi:10.1177/1073110520979383. (PDF).
  • Hrincu, V.M., Udwadia, F., Harrison, M., Connolly, M.B., Naftel, R., Ibrahim, G., Chiong, W., McDonald, P.J., Illes, J., Physician views on advanced neurotechnology for drug resistant epilepsy. Journal of Child Neurology, 2021, 36(3) 222-229. (PDF)
  • Palk., A., Illes, J., Thompson, P.H., Stein, D.J., Ethical issues in global imaging genetics collaborations. Neuroimage, 221, 2020,117208. (PDF)
  • Brown, K., Benjaminy, S., Illes, J. Deyell, R.J., Parent perspectives on information-seeking, trustworthiness, and decision-making in high-risk neuroblastoma. Journal of Pediatric Hematology and Oncology, 2020 Dec 2. (PDF)
  • Minielly, N., Feehan, C., Huang, A., Illes, J. Societal and neuroethical implications of COVID-19. Trends in Neuroscience, 2020.(PDF)
  • Harding, L., Illes, J., King, M., Resilience in Indigenous health research during COVID-19. Canadian Medical Association Journal, response published 16 December 2020. (Link)
  • Cameron, M., Illes, J. Politicians appeal to our sense of fairness in the battle against COVID-19. The Conversation, April 21, 2020. Reprinted in The Province, April 24, 2020, The London Press and The Owen Sound April 25, 2020. (PDF)
  • Rabin, J., Davidson, B., Giacobbe, P., Hamani, C., Cohn, M., Illes, J., Lipsman, N., Neuromodulation for major depressive disorder: A paradigm shift to capture efficacy and outcomes. Lancet Psychiatry, 2020, https://doi.org/10.1016/S2215-0366(20)30187-5. (PDF)
  • Cabrera L.Y., Courchesne C. Kiss, Z.H.T., Illes, J., Clinical perspectives on psychiatric neurosurgery. Stereotactic and Functional Neurosurgery, 2019, 97(5-6):391-398. http://doi:10.1159/000505080. (PDF)
  • Coates McCall., I., Minielly, N., Bethune, A., Lipsman, N., McDonald., P.J., llles, J. Readiness for first-in-human neuromodulatory interventions. Canadian Journal of Neurological Sciences, 2020; 00: 1–8. (PDF)
  • Illes, J., Lau, C. Connolly, M.B., Hrincu, V., McDonald, P.J., Ethically problematic medical device representation. American Journal of Bioethics, 2020, 20(8), 5-6. (PDF)
  • Cabrera L.Y., Courchesne C., Bittlinger M., Müller S., Martinez, R., Racine, E., and Illes, J.  Authentic Self and Last Resort Looking back and looking forward: Public perceptions of psychiatric neurosurgery. Journal of Culture, Medicine and Psychiatry, 2020, (PDF).
  • Harding, L., Illes, J. RE: Canadian Assessment of Deep Brain Stimulation Access: The Canada Study. Canadian Journal of Neurological Sciences. (PDF)
  • McFarlane, J., Illes, J., Neuroethics at the interface of machine learning and schizophrenia. Nature Schizophrenia, 2020, 6:18, https://doi.org/10.1038/s41537-020-0108-6. (PDF)
  • Cabrera L.Y., Courchesne C., Bittlinger M., Müller S., Martinez, R., Racine, E., and Illes, J. Looking back and looking forward: Public perceptions of psychiatric neurosurgery in Canada, Germany and Spain. Journal of Culture, Medicine and Psychiatry. (PDF)
  • Kaal, K.J., Harrison, M., Aguiar, M., McDonald, P.J., Illes, J., The clinical research landscape of pediatric drug resistant epilepsy. Journal of Child Neurology, 2020. (PDF)
  • Munjal, V., Arakelyan, M., Hrincu, V.M., McDonald. P.J., Illes, J. Paediatric epilepsy through the lens of news media. Epilepsy and Behavior, 2020, 111, 107200. (PDF)
  • McGuire, A.L., Aulisio, M.P., Davis, F.D., Erwin, C., Harter, T.D., Jagsi, R., Klitzman, R., Macauley, R. Racine, E., Wolf, S., Wynia, M., Wolpe, P., and The COVID-19 Task Force of the Association of Bioethics Program Directors (ABPD), Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force. American Journal of Bioethics, 2020. (PDF)
  • Feehan, C., Illes, J. The hidden risks of pre-traumatic stress. Royal Society of Canada and Globe and Mail Zero Canada Project. May 10, 2020. (PDF)
  • Erwin,C., Aultman, J. Harter, T., Illes, J., Kogan, C.J., Ethics issues in rural and remote communities. American Journal of Bioethics, 2020. (PDF)
  • Minielly, N., Hrincu, V., Illes, J., Privacy Challenges to the Democratization of Brain Data. iScience, 2020. (PDF)
  • Rossi, F., Illes, J. and the Stem Cell Working Group, Closing gaps, opening doors: An experimental collaboration in stem cell intervention. Molecular Biology Reports, 2020, 47(5): 4105–4108. (PDF)
  • International Brain Initiative Strategy Committee, Establishment of the International Brain Initiative. Neuron. 105, 212-216, 2020. (PDF)

Books (by year):

  • Illes, J. (Series Editor): Developments in Neuroethics and Bioethics, Elsevier Press, San Diego
    (Buchman, D.Z. and Davis, K. [Eds.] Pain Neuroethics, Volume 1, 2018; Radden, J., and Crastley, K., [Eds.] Ethics in Global Mental Health, Volume 2, 2019; Bard, I. and Hildt, E. [Eds.], Do It Yourself Neurotechnology, Volume 3, 2020; Hervia, M. [Ed.], NeuroLaw, Volume 4 [2021], in production; Clarke, A., Bos, J., Gardner, A. [Eds.], Neuroarchitecture and Neurodivergence, Volume 5 [2022]; Gibbard, B., [Ed.] Neurodevelopment, Volume 6 [in press]); Ienca, M. and Starke, G. [Eds.], Brains and Machines: Towards a Unified Ethics of AI and Neuroscience Volume 7 [in preparation]); M. Perreault and J. Illes, Crosscultural Neuroethics Volume 8 [in preparation].
  • Illes, J., McDonald, P.J., Lipsman, N. [Eds.] Special issue on Neuromodulation, Canadian Journal of Neurological Sciences, January 2023.

Book chapters (by year):

2024
  • Nuechterlein, A., Boyle, Q., Illes, J. Reimagining expertise and neutrality toward epistemic justice in research, clinical translation, and policy: A perspective from neuroethics. In M. Farina and A. Lavazza [Eds.] Philosophy, Expertise, and the Myth of Neutrality, Routledge Press, 2024, DOI:10.4324/9781003374480.
  • Boyle, Q., Kerr, T., Illes, J. Transcranial magnetic stimulation for opioid use disorder: Ethical recommendations for development and implementation, In V. Dublovic [Ed.], Ethical and Social Implications of TMS, Elsevier Press, in preparation.
  • Illes, J., The light shines back on you: Reflections on the women protégés of Bartha M. Knoppers. In M. Beauvais et al. [Eds.]. Promoting the ‘Human’ in Law, Policy, and Medicine, Brill Pubs, The Netherlands, in press.
  • Sudan, H.K., Boyle, Q., Kerr, T., Illes, J. Revive and survive: A critical lens on the refusal of care after opioid overdose, American Journal of Bioethics, in press

2023
  • Illes, J., Schaffrick, M., Ravitsky, V., Meslin, E.M., Bubela, T, Chandler, J.A., Knoppers, B.M., Upshur, R., Re- Invigorating notions of a bioethics council for Canada in a new era of biomedicine, Kaleidoscope on Global Bioethics, 2023, [Maria do Céu Patrão Neves, Ed.], pp. 95-104.

2022
  • Huang, C.H., Illes, J., The neuroethics of architecture, In: Clarke, A. [Volume Editor], Neuroarchitecture, Developments in Neuroethics and Bioethics [J. Illes, Series Editor], 2022, Volume 5, Elsevier.

2021
  • Ibrahim, G.M., Kiss, Z., Meng, Y., Sankar, T., Weise, L., From vision to action: Canadian leadership in ethics and neurotechnology. In: E. Moro, M. Polosan, and C. Hamani [Eds.] Emerging Horizons in Neuromodulation: New Frontiers in Brain and Spine Stimulation, Volume 158, In press.
  • Illes, J., Lipsman, N., McDonald, P.J., Hrincu, V., Chandler, J., Fasano, A., Giacobbe, P., Hamani, C., Ibrahim, G.M., Kiss, Z., Meng, Y., Sankar, T., Weise, L., From vision to action: Canadian leadership in ethics and neurotechnology. In:  E. Moro, M. Polosan, and C. Hamani [Eds.] Emerging Horizons in Neuromodulation: New Frontiers in Brain and Spine Stimulation, Volume 158, In press.
  • Boyle, Q., van Donkelaar, P., Illes, J. Methods of neuroethics, In: Della Sala [Ed.], Encyclopedia of Behavioural Neuroscience 2e. New York, 2021, In press.

2020
  • Minielly, N., Hrincu, V.M., Illes, J., A view on incidental findings and adverse events associated with neurowearables in the consumer marketplace, Developments in Neuroethics and Bioethics. Academic Press, Elsevier, (Massachusetts), April 2020.
  • Hrincu, V.M., Courchesne, C., Lau, C., Illes, J., Contemporary neuroethics, Encyclopedia of Behavioural Neuroscience. Springer (New York), 2020. (Link)

Recent Publications (by year):

2024
  • Dosso, J. A., Kailley, J. N., & Robillard, J. M. (2024). The League: A person-centered approach to the development of social robotics for pediatric anxiety. Health Expectations. 27, e13981. doi: 10.1111/hex.13981
  • Dosso, J. A., Kailley, J. N., & Robillard, J. M. (2024). What does ChatGPT know about dementia? A comparative analysis of information quality. Journal of Alzheimer’s Disease. 97(2), 559-565. doi: 10.3233/JAD-230573
  • Robillard, J. M., Masellis, M., Martin, S. E., Khachaturian, A. S., & Dixon, R. A. (2024). The Return of Biomarker Results in Research: Balancing Complexity, Precision, and Ethical Responsibility. Journal of Alzheimer's Disease, 97(3), 1083-1090.
  • Tam, M. T., Wu, J. M., Zhang, C. C., Pawliuk, C., Robillard, J. M. (2024). A systematic review of the impacts of media mental health awareness campaigns on young people. Health Promotion Practice.
  • Tam, M. T., Daboub, A., Lou, H., Robillard, J. M. (2024) Short communication: Lived experience perspectives on geenetic testing for a rare eye disease. Journal of Community Genetics, 15, 97-101.
  • Martin, S. E., Tam, M. T., & Robillard, J. M. (2024). Technology in Dementia Education: An Ethical Imperative in a Digitized World. Journal of Alzheimer's Disease: JAD, 97(3), 1105-1109.
  • Hrincu V, Zaleski G, Robillard JM. Ethical Considerations at the Intersection of Social Media and Dementia Prevention Research. J Prev Alzheimers Dis. 2024;11(2):274-284. doi: 10.14283/jpad.2024.4. PMID: 38374733.

2023
  • Dosso, J. A., Kailley, J. N., Guerra, G. K., & Robillard, J. M. (2023). Older adult perspectives on emotion and stigma in social robots. Frontiers in Psychiatry, 13. https://www.frontiersin.org/articles/10.3389/fpsyt.2022.1051750
  • Dosso JA, Riminchan A, Robillard JM. Social robotics for children: an investigation of manufacturers' claims. Front Robot AI. 2023 Dec 19;10:1080157. doi: 10.3389/frobt.2023.1080157. PMID: 38187475; PMCID: PMC10770258.
  • Kabacińska, K., Vu, K., Tam, M., Edwards, O., Miller, W. C., & Robillard, J. M. (2023). “Functioning better is doing better”: older adults’ priorities for the evaluation of assistive technology. Assistive Technology, 35(4), 367–373. https://doi.org/10.1080/10400435.2022.2113180
  • Dosso JA, Kailley JN, Martin SE, Robillard JM. “A Safe Space for Sharing Feelings”: Perspectives of Children with Lived Experiences of Anxiety on Social Robots. Multimodal Technologies and Interaction. 2023; 7(12):118. https://doi.org/10.3390/mti7120118

2022
  • Wu, J.M., Tam, M.T., Buch, K., Khairati, F., Wilson, L., Bannerman, E., Guerrero, A., Eisen, A., Toyer, W., Stevenson, T., Robillard, J.M. (2022). The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study. BMC Palliative Care. (Link)
  • Wu, J.M., Tam, M.T., Page, P.M., Lamb, E.A., Jordan, I., Chambers, C.T., Robillard, J.M. (2022). Pain management communication between parents and nurses after pediatric outpatient surgery. Journal of Pediatric Nursing. (Link)
  • Tam, M.T., Dosso, J.A., Robillard, J.M. (2022). Community and Provider Evaluation of a Canadian Dementia Support Services Program. Canadian Geriatrics Journal. (Link)
  • Jicha, G.A., Abner, E., Arnold, S.E., Carrillo, M.C., Dodge, H., Edland, S., Fargo, K., Feldman, H., Goldstein, L.B., Hendrix, J., Peters, R., Robillard, J.M., Schneider, L., Titiner, J.R., Weber, C.J. (2022). Committee on High-quality Alzheimer’s Disease Studies (CHADS) Consensus Report. Alzheimer’s & Dementia. (Link)
  • Watersone, R., Robillard, J.M., Prescott, T.J. (2022) Robot telepresence as a practical tool for responsible and open research in trustworthy autonomous systems. Journal of Responsible Technology. (Link)
  • Wood, M.D., West, M.C.,  Sreepada, R.S., Loftsgard, K.C., Petersen, L.,  Robillard, J.M., Page, P., Ridgway, R., Chadha, N.K., Portales-Casamar, E., Görges, M. and the Pediatric Pain Prediction Collaboration (2022). Identifying Risk Factors, Patient-Reported Experience and Outcome Measures, and Data Capture Tools for an Individualized Pain Prediction Tool in Pediatrics: Focus Group Study. JMIR Perioperative Medicine. (Link)
  • Prescott, M., Gamache, S., Mortenson, W.B., Best, K.L., Grandisson, M., Mostafavi, M.A., Labbe, D., Morales, E., Mahmood, A., Borisoff, J., Sawatzky, B., Miller, W.C., Bulk, L.Y., Robillard, J.M., Routhier, F. (2022). Providing accessible recreation outdoors – user-driven research on standards: protocol for mobile and web-based interviews for winter assessments. JMIR Research Protocols. (Link)
  • Hrincu, V., An, Z., Joseph, K., Jiang, Y.F., Robillard, J.M. (2022). Dementia research on Facebook and Twitter: current practices and challenges. Journal of Alzheimer’s Disease. (Link)
  • Boccardi, M., Handels, R., Gold, M., Grazia, A., Lutz, M.W., Martin, M., Nosheny, R., Robillard, J.M., Weidner, W., Alexandersson, J., Thyrian, J.R., Winblad, B., Barbarino, P., Khachaturian, A., Teipel, S. (2022). Clinical research in dementia: a perspective on implementing innovation. Alzheimer’s & Dementia. (Link)
  • Jimenez-Rodriguez, A., Robillard, J.M., Prescott, T.J. (2022). Cognitive architecture as a service: scaffolded integration of heterogeneous models through event streams. Conference on Biomimetic and Biohybrid Systems. (Link)
  • Prescott, T.J. & Robillard, J.M. (2022). Designing socially-assistive robots: a relational approach. ICCHP-AAATE. (Link)
  • Kabacinska, K., Vu, J., Tam, M., Edwards, O., Miller, W.C., Robillard, J.M. (2022). ‘Functioning better is doing better’: older adults’ priorities for the evaluation of assistive technology. Assistive Technology. (Link)
  • Dosso, J.A., Bandari, E., Malhotra, A., Guerra, G.K., Hoey, J., Michaud, F., Prescott, T.J., Robillard, J.M. (2022). User perspectives on emotionally aligned social robots for older adults and persons living with dementia. Journal of Rehabilitation and Assistive Technology Engineering. (Link)
  • Kabacinska, K., McLeod, K., MacKenzie, A., Vu, K., Cianfrone, M., Tugwell, A., Robillard, J.M. (2022). What criteria are young people using to select mobile mental health applications? A nominal group study. Digital Health. (Link)

2021
  • Robillard, J.M., Feng, T.L., Kabacinska, K. (2021) Access to genetic testing for rare diseases: existing gaps in public-facing information. World Medical & Health Policy, 1-8. (Link)
  • Tam, M.T., Gauthier, S., Ng, K.P., Everett, F., Robillard J.M. (2020) Facilitating recruitment for dementia research: insights from an international panel. Dementia 20(3), 1182-86. (Link)
  • Tam M.T., Dosso J.A., Robillard J.M. (2021). The impact of a global pandemic on people living with dementia and their care partners: analysis of 417 lived experience reports. Journal of Alzheimer’s Disease 80(2), 865-75. (PDF)
  • Gibbard, M., Zivkovic, I., Jivraj, B., Schaeffer, E., Robillard, J.M., Mulpuri, K. (2021). A global survey of patient and caregiver experiences throughout care or developmental dysplasia of the hip. Journal of Pediatric Orthopedics 41(6), e392-97. (Link)
  • Reid, H., Mohammadi, S., Watson, W., Robillard J.M., Crocker, M., Westby, M.D., Miller, W.C. (2021). Patient and caregiver perspectives on an eHealth tool: a qualitative investigation of preferred formats, features and characteristics of a presurgical eHealth education module. Rehabilitation Process and Outcome10, 1-13. (Link)
  • Wang, R.H., Kenyon, L.K., McGilton, K.S., Miller, W.C., Hovanec, N., Boger, J., Viswanathan, P., Robillard, J.M., Czarnuch, S.M. (2021). The time is now: a FASTER approach to generate research evidence for technology-based interventions in the field of disability and rehabilitation. In press, Archives of Physical Medicine and Rehabilitation. (Link)
  • Kodali, N., Sidhu, B.V., Schaeffer, E.K., So, J., Habib, E., Robillard, J.M., Mulpuri, K. (2021). Content analysis of information about developmental dysplasia of the hip on Twitter. Indian Journal of Orthopaedics. (PDF)
  • Prescott, M., Routhier, F., Labbe, D., Grandisson, M., Mahmood, A., Morales, E., Best, K.L., Mostafavi, M., Borisoff, J., Gamache, S., Sawatzky, B., Miller, W.C., Bulk, L.Y., Robillard, J.M., Jenkins, H.T., Seetharaman, K.R., Mortenson, B. (2021). Providing Accessible ReCreation Outdoors: User-driven Research on Standards (PARCOURS) – protocol for a multi-phase study. Journal of Medical Internet Research Protocols. (PDF)

2020
  • Ghafurian, M., Hoey, J., Tchorni, D., Ang, A., Tam, M., Bal, P., Robillard, J.M. (2020) Impact of perceived identities on acceptance in older adults. In Press, Pervasive Health.
  • Tam, M.T., Wu, J.M., Page, P.M., Lamb, E.A., Jordan, I., Chambers, C.T., Robillard, J.M. (2020) Barriers and facilitators to effective pain management by parents after pediatric outpatient surgery. The Journal of Pediatric Health Care. (PDF)
  • Kabacinska, K., Prescott, T.J., Robillard, J.M. (2020) Socially assistive robots as mental health interventions for children: a scoping review. International Journal of Social Robotics. (PDF)
  • Robillard, J.M., Goldman, I.P., Prescott, T.J., Michaud, F. (2020) Addressing the ethics of telepresence applications through end-user engagement. Journal of Alzheimer’s Disease 76(2):457-60. (PDF)
  • Kabacinska, K., Robillard, J.M. (2020) Realizing the potential of robotics for aging care through co-creation. Journal of Alzheimer’s Disease 76(2):461-66. (PDF)
  • Robillard, J.M., Bourne, S.C., Tam, M.T., Page, P.M., Lamb, E.A., Gogal, C., Skarsgard, E.D., Afshar, K. (2020) Improving the pediatric surgery patient experience: an 8-year analysis of narrative quality data. BMJ Open Quality 9:e000924. (PDF)
  • Kabacinska, K., Sharma, N., Kaye, J., Mattek, N., Kuzeljevic, B., Robillard, J.M. (2020) Investigating the concept of participant burden in aging technology research. BMC Geriatrics 20:50. (PDF)
  • Tao, G., Charm, G., Kabacinska, K., Miller, W.C., Robillard, J.M. (2020) Evaluation tools of assistive technologies: a scoping review. Archives of Physical Medicine and Rehabilitation 101(6):1025-40. (PDF)

Publications (by project):

Aging 2.0: Ethics needed
  • Robillard, J.M., (2016) The online environment: a key variable in the ethical response to complementary and alternative medicine for Alzheimer disease. Journal of Alzheimer Disease, 51(1):11-3. (PDF)
  • Robillard, J.M., Illes, J., Arcand, M., Beattie, B.L., Hayden, S., Lawrence, P., McGrenere, J., Reiner, P.B., Wittenberg, D., Jacova, C., (2015) Scientific validity and ethics of online tests for Alzheimer disease. Alzheimer’s Disease and Dementia: Diagnosis, Assessment and Disease Monitoring, 1(3):281-8. (PDF)
  • Robillard, J.M., Johnson, T.W., Hennessey, C., Beattie, B.L., Illes, J., (2013) Aging 2.0: Health information about dementia on Twitter. PLoS One. Jul 26;8(7):e69861. (PDF)
  • Robillard, J.M., Federico, C.A., Tairyan, K., Ivinson, A.J., Illes, J., (2011) Untapped ethical resources for neurodegeneration. BMC Medical Ethics. 12:9. (HTML ver.)

Public attitudes towards emerging biotechnologies for the brain
  • Robillard, J.M., Cabral, E., Hennessey, C., Kwon, B.K., Illes, J., (2015) Fueling hope: Stem cells in social media. Stem Cell Reviews and Reports. 11(4):540-6. (PDF)
  • Robillard, J.M., (2015) Communicating in context: A priority for gene therapy researchers.  Expert Opinion on Biological Therapy 15(3):315-8. (PDF)
  • Robillard, J.M., Roskams-Edris, D., Kuzeljevic, B., Illes, J., (2014) Prevailing public perceptions of the ethics of gene therapy. Human Gene Therapy. 25(8):740-6. (PDF)
  • Robillard, J.M., Whiteley, L., Johnson, T.M., Lim, J., Wasserman, W.W., Illes, J., (2012) Gene therapy: Capturing hopes and fears through an online Q&A platform. Journal of Medical Internet Research. 15(3):e44. (HTML ver.)

Media representations of mental health
  • Robillard, J.M., Illes, J., (2011) A link in the ink: mental illness and criminal responsibility in the media. Journal of Ethics in Mental Health. 6:1-7. (PDF)