Publications

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Recent Publications (by year):

  • Radic, J.A.E., Illes, J., McDonald, P.J., Fetal repair of open neural tube defects: Ethical, legal and social issues. Cambridge Quarterly Healthcare Ethics. In press.
  • Illes, J., Kiss, Z., Roskams-Edris, D., Anderson-Redick, S., Response: No claims on brains. Nature Biotechnology. In press.
  • Zarzeczny, A., Atkins, H., Illes, J., Caulfield, C., The stem cell market & policy options: A need for clarity & realistic hope. Journal of Law and the Biosciences, 2018, In press.
  • Traboulsee, A., Machan, L., Girard, L., Raymond, J., MD; Vosoughi, R., Hardy, B.W., Emond, F., Gariepy, J-L., Bone, B.N., Siskin, G.P., Klass, D., Isserow, S., Illes, J., Sadovnick, A.D., Safety and efficacy of jugular and azygos venoplasty in multiple sclerosis: a randomized, double blind, sham-controlled phase II trial. Neurology, 2018;91:815-816. doi:10.1212/WNL.0000000000006419. (Link)
  • Global Neuroethics Summit Delegates, Rommelfanger K.S., Jeong, S.J., Ema, A., Fukushi, T., Kasai, K., Ramos, K.M., Salles, A., Singh, I., Neuroethics questions to guide ethical research in the brain projects: A cross-cultural approach. Neuron, 100, 10, 2018, 19-36. (PDF)
  • Fins, J.J., Illes, J., Pragmatic convergence and the epistemology of an adolescent neuroethics, In: J. Chandler [Ed.] Competing Identities of Neuroethics. Clinical Neuroethics, 2018, 27, 554–557. doi:10.1017/S0963180118000075. (Link)
  • Cabrera, L.Y., Lou, H., Bittlinger, T.M., Muller, S., Illes, J., Reader comments to media reports on psychiatric neurosurgery: Past history casts shadows on the future. Acta Neurochirgica, 2018, https://doi.org/10.1007/s00701-018-3696-4 (Link)
  • Kaal, J.K., Harrison, M., Whitehurst, D.G.T., Townson, A., Dance, D., Stoessl, A.J., Illes, J., Commentary and Follow-up: Operationalizing Neuroimaging for Disorders of Consciousness in the Canadian Context. Canadian Journal of Neurological Sciences, 2018, 00, 1-3, DOI: https://doi.org/10.1017/cjn.2018.316. (Link)
  • Benjaminy, S., Traboulsee, A., Illes, J., Resilience, trust, and civic engagement in the Post-CCSVI era. BMC Health Services Research, 2018, DOI: 10.1186/s12913-018-3130-x. (PDF)
  • Benjaminy, S., Lo, C., Illes, J*., Traboulsee, A.*, Reflections on translation: Views of participants in a multi-site Canadian CCSVI clinical trial. Neurology Clinical Practice, 2018, 8(3), 232-239. doi:10.1212/CPJ.0000000000000462 (Link)
  • Matsson, I., Illes, J., Ethics and the neurological effects of water contamination by methylmercury. Canadian Journal of Undergraduate Research, April 2018. (PDF)
  • Cabrera, L.Y., Lou, H., Bittlinger, T.M., Muller, S., Illes, J., Contemporary media coverage of psychiatric neurosurgery: Insights from a cross-national comparison. Acta Neurochirgica. 2017,160(3):625-635. DOI org/10.1007/s00701-017-3428-1. (link)
  • Gilbert, F., Cook, M., O’Brien, T., Illes, J., Losing control over brain computer interfaces: Results from first-in-human trial. Science and Engineering Ethics. 2017. DOI 10.1007/s11948-017-0001-5. (PDF)
  • Illes, J., McDonald, P., Head transplants: Ghoulish takes on new definition. American Journal of Bioethics Neuroscience, 2017, 8(4): 211–242. (PDF)
  • Yuste, R., Goering, S., Agüera y Arcas, B., Bi, G., Carmena, J., Carter, A., Fins, J.J., Friesen, P., Gallant, J., Grady, C., Huggins, Illes, J., Kellmeyer, P. Klein, E., Marblestone, A., Mitchell C., Parens, E., Pham, M., Ramos K., Rubel, A., Sadato, N., Specker Sullivan, L., Teicher, M., Wasserman, D., Wexler, A., Whittker, M., Wolpaw, J., Comment: Ethical guidelines for neurotechnologies and machine Intelligence. Nature, 2017, 160(551):159-163. (PDF) (link)
  • Cabrera, L.Y., Illes, J., Stimulating consciousness: At the intersection of innovation and ethics. The Lancet Neurology. 2017.
  • Specker., Illes, J., Ethics in published brain computer interface research. Journal of Neural Engineering. 2017, Sep 21. doi: 10.1088/1741-2552/aa8e05. [Epub ahead of print] PubMed PMID: 28931749. (link)

  • Shriver, A.J., Cabrera, L.Y., Illes, J., Environmental neuroethics: Bridging environmental ethics and mental health. American Journal of Bioethics, 2017, 17(9): 26-27. DOI: 10.1080/15265161.2017.1353172 (PDF)
  • Illes, J., Benjaminy, S., Isasi, R., Lomax, G., Master, Z., McCabe, C., McCormick, J. Ogbogu, U., Ravitsky, V., Robillard, J.M., Rossi, F., Wilson, B., Zarzeczny, A., A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine. Nature Regenerative Medicine, 2017, (2017) 2:21, DOI:10.1038/s41536-017-0026-z. (PDF)
  • Whiteley, L.M., Borgelt, E., Stewart, E., Illes, J., Parent perspectives on biomarkers for OCD: Talking of difficult presents, desired pasts, and imagined futures. BioSocieties, 2017, DOI:10.1057/s41292-017-0046-3. (PDF)
  • Knoppers, B.M., Isasi, R., Caulfield, T., Kleiderman, E., Illes, J., Ogbogu, U., V., Rudnicki, M., Human gene editing: Revisiting Canadian policy. Nature – Regenerative Medicine, 2017, 2:3. (PDF)
  • Cabral, M., Illes, J., The catch-22 of neuroimaging, disorders of consciousness, and end-of-life decisions. JAMA (Neurology), jamanetwork/2017/neu/03_06_2017/nv160014pap. (PDF)
  • Edris-Roskams, D., Anderson-Redick, S., Kiss, Z*. Illes, J*., Situating Brain Regions Among Patent Rights and Moral Risks, Nature Biotechnology [Patents], 2017, 35(2):1-3. (*co-lead authors). (PDF)

  • Robillard, J.M., Illes, J., Medicine and Society – Manipulating memories: The ethics of yesterday’s science fiction and today’s reality, American Medical Association, 2016, 18(12):1225-1231. (PDF)
  • Di Pietro, N.C., Illes, J., Closing gaps: Strength-based approaches to research with Aboriginal children with neurodevelopmental disorders, Neuroethics, 2016, 10(10): DOI 10.1007/s12152-016-9281-8. (PDF)
  • Moses, T., Illes, J., Ethics, ethicists, and professional organizations in the neurological sciences, American Journal of Bioethics – Neurosciences. 8:1, 3-11. (PDF)
  • Byram, A.C., Lee, G., Owen, A.M., Ribary, U., Stoessl, A.J., Townson, A., Illes, J., Ethical and Clinical Considerations at the Intersection of Functional Neuroimaging and Disorders of Consciousness: The Experts Weigh In. Cambridge Quarterly of Healthcare Ethics. 2016, 25(4), pp. 613–622. doi: 10.1017/S0963180116000347. (PDF)
  • Specker Sullivan, L., Illes, J., Beyond ‘communication and control’: Towards ethically complete rationales for brain-computer interface research. Brain-Computer Interfaces, 2016, 3(3):156–163. (PDF)
  • Di Pietro, N., De Vries, J., Paolozza, A., Reid, D., Reynolds, J.N., Salmon, A., Wilson, M., Stein, D.J., Illes, J.,  Ethical Challenges in Contemporary FASD Research and Practice: A Global Health Perspective. Cambridge Quarterly of Healthcare Ethics. 2016, 25(4), 726–732. doi:10.1017/S096318011600044X (PDF)
  • Sharpe, K., Di Pietro, N., Jacob, K. J., Illes, J., A dichotomy of information-seeking and information-trusting: Stem cell interventions and children with neurodevelopmental disorders. Stem Cell Reviews and Reports. 2016, 12(4), 438–47. (PDF)
  • Sharpe, K., Di Pietro, N., Mc Glanaghy, E., Illes, J., In the know and in the news: How science and the media inform the public about stem cells for autism and cerebral palsy. Stem Cell Reviews and Reports. 2016, 12(1), 1-7. (PDF)
  • Cabrera, L., Tesluk, J., Matthews, R., Chakraborti, M., Illes, J., Brain matters: From environmental ethics to environmental neuroethics. Environmental Health. 2016,15:20-25. (PDF)
  • Benjaminy, S., Lo, C., Illes, J., Social responsibility in stem cell research - Is the news all bad? Stem Cells Reviews and Reports, 2016, DOI 10.1007/s12015-016-9646-8. (PDF)
  • Illes, J., Owen, A.M., Byram, A.C., and the MCS Working Group, Operationalizing neuroimaging for disorders of consciousness in the face of uncertainty and contingency: A view for the Canadian landscape. Can J Neurol Sci., 2016, 1-3. (PDF)

  • Cabrera, L., Beattie, L.B., Dwosh, E., Illes, J., Early Onset Familial Alzheimer Disease: Biomedical and traditional approaches. Open Medicine, 2015, DOI: 10.1177/2050312115621766.(PDF)

Books (by year):

  • Illes, J. (Ed.) Neuroethics: Anticipating the Future, Oxford University Press, Oxford, UK, July 2017.
  • Illes, J. (Ed.) Series: Developments in Neuroethics and Biomedicine, Elsevier Press, San Diego (2017-2020)

Books chapters (by year):

  • Rahimzadeh, V., Bartlett, G., Longo, C., Illes, J. Interactive role-playing and health-related quality of life assessment in children with neurocognitive sequelae:  A global neuroethics research approach, In: D. Stein and I. Singh [Eds.] Global Mental Health. Springer, 2018, in press.
  • Courchesne, C., Illes, J. Response to Sankary and Ford: The inverse problematic to consent and loss of capacity, In. A. Cascio and E. Racine [Eds.] Research Involving Participants with Impaired Cognition: Ethics, Autonomy, Inclusion, and Innovation. Oxford University Press, in press.
  • Dubljevic, V. Coates McCall, I., Illes, J, Neuroenhancement at work: Addressing the ethical, legal, and social implications, In: E. Racine [Ed.] Organizational Neuroethics, Springer, New York, in press.

    Tesluk, J., Illes, J., Matthews, R. First Nations and environmental neuroethics: Perspectives on brain health from a world of change. In: J. Illes [Ed.] Neuroethics: Anticipating the Future, Oxford Press, Oxford, UK, 2017, 455-476.
  • Illes, J., Hossain, S. Introduction part I: Looking forward. In: J. Illes [Ed.] Neuroethics: Anticipating the Future, Oxford Press, Oxford, UK, 2017, vii-viii.
  • Illes, J. Introduction part II: Looking back – Neuroethics: A model for the reciprocal relationship between values and understanding. In: J. Illes [Ed.] Neuroethics: Anticipating the Future, Oxford Press, Oxford, UK, 2017, ix-xvi.
  • Specker Sullivan, L., Illes, J. Models of engagement in neuroethics programs: Past, present, and future. In E. Racine and J. Aspler [Eds.] The Debate about Neuroethics: Perspectives on the Field’s Development, Focus, and Future. Springer, 2017:165-181.
  • Fins, J.J., Illes, J. Pragmatic convergence and the epistemology of an adolescent neuroethics, In: J. Chandler [Ed.] Competing Identities of Neuroethics, Clinical Neuroethics. (Link)

Recent Publications (by year):

  • Tougas, M.E., Chambers, C.T., Corkum, P., Robillard, J.M., Gruzd, A., Howard, V., Kampen, A., Boerner, K., Hundert, A., (2018) An examination of social media content about children's health. In Press, Journal of Medical Internet Research Pediatrics and Parenting.
  • Zarzeczny, A., Atkins, H., Illes, J., Kimmelman, J., Master, Z., Robillard, J.M., Snyder, J., Turner, L., Zettler, P., Caulfield, T., (2018) The stem cell market and policy options: a call for clarity. In Press, Journal of Law and the Biosciences.
  • Robillard, J.M., Jun, J.H., Lai, J.A., Feng, T.L., (2018) The QUEST for quality online health information: development and validation of a novel, short and quantitative tool. BMC Medical Informatics and Decision-making 18(1):87. (PDF)
  • Robillard, J.M., Cleland, I., Hoey, J., Nugent, C., (2018) Ethical adoption: a new imperative in the development of technology for dementia. Alzheimer’s & Dementia 14(9):1104-13. (Link)
  • Robillard, J.M., Lai, J.A., Wu, J.M., Feng, T.L., Hayden, S., (2018) Patient perspectives on the experience of computerized cognitive screening in a clinical setting. Alzheimer’s & Dementia: Translational Research and Clinical Implications 4:297-303. (Link)
  • Gold, M., Amatniek, J., Carrillo, M.C., Cedarbaum, J.M., Hendrix, J.A., Miller, B.B., Robillard, J.M., Rice, J.J., Soares, H., Tome, M.B., Tarnanas, I., Vargas, G., Bain, L.J., Czaja, S.J., (2018) Digital technologies as biomarkers, clinical outcomes assessment and recruitment tools in Alzheimer’s Disease Clinical Trials. Alzheimer’s & Dementia: Translational Research and Clinical Implications 4:234-42. (Link)
  • Teipel, S., Konig, A., Hoey, J., Kaye, J., Kruger, F., Robillard, J.M., Kirste, T., Babiloni, C., (2018) Home-based pervasive information and communication technology provides real world evidence for future clinical trials in dementia. Alzheimer's & Dementia 14(9):1216-31. (Link)
  • Robillard, J.M., Sporn, A.B., (2018). Static vs interactive online resources about dementia: a comparison of readability scores. Gerontotechnology, 17(1):29-37. (Link)
  • Robillard, J.M., Hoey, J., (2018) Emotion and motivation in cognitive assistive technologies for dementia. IEEE Computer, 51(3):24-34. (Link)

  • Robillard, J.M., Feng, T.L., (2017) When patient engagement and research ethics collide: lessons from a dementia forum. Journal of Alzheimer’s Disease, 59(1):1-10. (PDF)
  • Robillard, J.M., (2017) [Invited editorial] Who is to blame? Medical hype in the media. Movement Disorders, 32(10):1345-47.
  • Konig, A., Francis, L.E., Joshi, J., Robillard, J.M., Hoey, J., (2017) Qualitative study of affective identities in dementia patients for the design of cognitive assistive technologies. Journal of Rehabilitation and Assistive Technologies Engineering, 4:1-15. (PDF)
  • Robillard, J.M., Alhothali, A., Varma, S., Hoey, J., (2017) Intelligent and affectively aligned evaluation of online health information for older adults. Proceedings of the 31st Association for the Advancement of Artificial Intelligence (AAAI) Conference on Artificial Intelligence, San Francisco, February 2017.

  • Robillard, J.M., Illes, J., (2016) [Invited editorial] Manipulating memories: the ethics of yesterday’s science fiction and today’s reality. American Medical Association Journal of Ethics. 18(12):1225. (PDF)
  • Robillard, J.M., Lo, C., Feng, T.L., Hennessy, C., (2016) "A Light Switch in the #Brain": Optogenetics on Social Media. Neuroethics, doi:10.1007/s12152-016-9276-5. (PDF)
  • Robillard, J.M., (2016) The online environment: a key variable in the ethical response to complementary and alternative medicine for Alzheimer disease. Journal of Alzheimer Disease, 51(1):11-3. (PDF)

  • Robillard, J.M., Cabral, E., Hennessey, C., Kwon, B.K., Illes, J., (2015) Fueling hope: Stem cells in social media. Stem Cell Reviews and Reports. 11(4):540-6. (PDF)
  • Robillard, J.M., Illes, J. Arcand, M., Beattie, B.L., Hayden, S., Lawrence, P., McGrenere, J., Reiner, P.B., Wittenberg, D., Jacova, C., (2015) Scientific validity and ethics of online tests for Alzheimer disease. Alzheimer’s Disease and Dementia: Diagnosis, Assessment and Disease Monitoring, 1(3):281-8. (PDF)

Publications (by project):

  • Robillard, J.M., (2016) The online environment: a key variable in the ethical response to complementary and alternative medicine for Alzheimer disease. Journal of Alzheimer Disease, 51(1):11-3. (PDF)
  • Robillard, J.M., Illes, J., Arcand, M., Beattie, B.L., Hayden, S., Lawrence, P., McGrenere, J., Reiner, P.B., Wittenberg, D., Jacova, C., (2015) Scientific validity and ethics of online tests for Alzheimer disease. Alzheimer’s Disease and Dementia: Diagnosis, Assessment and Disease Monitoring, 1(3):281-8.
  • Robillard, J.M., Johnson, T.W., Hennessey, C., Beattie, B.L., Illes, J., (2013) Aging 2.0: Health information about dementia on Twitter. PLoS One. Jul 26;8(7):e69861. (PDF)
  • Robillard, J.M., Federico, C.A., Tairyan, K., Ivinson, A.J., Illes, J., (2011) Untapped ethical resources for neurodegeneration. BMC Medical Ethics. 12:9. (HTML ver.)

  • Robillard, J.M., Cabral, E., Hennessey, C., Kwon, B.K., Illes, J., (2015) Fueling hope: Stem cells in social media. Stem Cell Reviews and Reports. 11(4):540-6. (PDF)
  • Robillard, J.M., (2015) Communicating in context: A priority for gene therapy researchers.  Expert Opinion on Biological Therapy 15(3):315-8. (PDF)
  • Robillard, J.M., Roskams-Edris, D., Kuzeljevic, B., Illes, J., (2014) Prevailing public perceptions of the ethics of gene therapy. Human Gene Therapy. 25(8):740-6. (PDF)
  • Robillard, J.M., Whiteley, L., Johnson, T.M., Lim, J., Wasserman, W.W., Illes, J., (2012) Gene therapy: Capturing hopes and fears through an online Q&A platform. Journal of Medical Internet Research. 15(3):e44. (HTML ver.)

  • Robillard, J.M., Illes, J., (2011) A link in the ink: mental illness and criminal responsibility in the media. Journal of Ethics in Mental Health. 6:1-7. (PDF)

Recent Publications (by year):

  • De Lotbiniere-Bassett, M.P., McDonald, P.J., Industry Financial Relationships in Neurosurgery in 2015: Analysis of the Sunshine Act Open Payments Database, World Surgery, 2018; 114: e925-5. (Link)

  • McDonald, P.J., Medical Assistance in Dying: What Does It Mean for Neurologists and Neurosurgeons?, Canadian Journal of Neurological Sciences, 2017; 44: 629-630 (PDF)

  • Ellis, M.J., McDonald, P.J., Cordingly, D., Mansouri, B., Ritchie, L., Retirement from sport - Considerations following pediatric sports-related concussion: Case illustrations and institutional approach. Neurosurg Focus, 40(4):E8, 2016. (PDF)
  • Ellis, M.J., Ritchie, L., Selci, E., Chu, S., McDonald, P.J., Russell, K., Googling concussion care: a critical appraisal of online concussion healthcare providers and practices in Canada. Clin J Sport Med, 2016. 27(2):179-182. doi: 10.1097/JSM.0000000000000305 (PDF)
  • McDonald, P.J., Ventriculoperitoneal shunt failure from spontaneous knotting of the peritoneal catheter. CMAJ, 188(5):E97, 2016. (PDF)
  • Steinbok, P., Gopalakrishnan, C.V., Hengel, A.R., Vitali, A.M., McDonald, P.J., Hukin, J, et. al., Pediatric thalamic tumors in the MRI era: a Canadian perspective. Childs Nerv Syst, 32(2): 269-80, 2016. (PDF)
  • Zeiler, F.A., Janik, M.K., McDonald, P.J., Kaufmann, A.M., Fewer, D., Butler, J., Schroeder, G., West, M., Gamma Knife radiosurgery for pediatric arteriovenous malformations: a Canadian experience. Can J Neurol Sci, 43(1):82-6, 2016.(PDF)

  • Russell, K., Ritchie, L., Vis, S., Chu, S., Selci, E., McDonald, P.J., Ellis, M.J., Measuring the scientific impact of sports-related concussion research: a citation analysis study. Curr Research: Concussion, 2(3): 113-121, 2015. (PDF)
  • Zeiler, F.A., Silvaggio, J., Iancu, D., McDonald, P.J., Secondary vein of Galen malformation treated with combined endovascular and endoscopic approach. Interdisciplinary Neurosurg, 2015 2:164-167. (PDF)
  • Ellis, M.J., Leiter, J., Hall, T., McDonald, P.J., Sawyer, S., Silver, N., Bunge, M., Essig, M., Neuroimaging findings in sports-related concussion: clinical article. J Neurosurg Pediatrics, 16:241-247, 2015. (PDF)
  • Haji, F., Clarke, D.B., Matte, M., Brandman, D.M., Brien, S., deRibaupierre, S., O’Kelly, C., Christie, S., Wallace, M.C., McDonald, P.J., Kulkarni, A.V., Walling, S., Macleod, A., Teaching for the transition: the Canadian neurosurgery “Rookie Camp” for PGY-1 trainees. Can J Neurol Sci, 42(1):25-33, 2015. (PDF)
  • Ellis, M.J., McDonald, P.J., Co-existent sports-related concussion and cervical SCIWORA in an adolescent: case report. Curr Sports Med Rep, 14(1):20-2, 2015. (PDF)

Non-medical Publications:

  • McDonald P.J., Helmets save cyclists’ brains. Winnipeg Free Press, June 29, 2010, p A19. (Link)
  • McDonald P.J., There’s a bug in your head. in Klass, P., Real Life of a Pediatrician. Kaplan Publishing 2009, p 129-30.

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