Publications

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Recent Publications (by year):

  • Illes, J. (2023). Reflecting on the Past and Future of Neuroethics: The Brain on a Pedestal. AJOB Neuroscience. (Link)
  • Lewis, A., Young, M.J., Rohaut, B., Jox, R.J., Claassen, J., Creutzfeldt, C.J., Illes, J., Kirschen, M., Trevick, S., Fins, J.J., and The Curing Coma Campaign and its Contributing Members (2023). Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness. Neurocrit Care. (Link)
  • Nuechterlein, A., Feng, L., Yehia, A., Illes, J. (2023). Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury. Spinal Cord. (Link)
  • Nadler, R. (2023). Antitrust as a Guardrail for Socially Responsible Neurotechnology Design. The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques. (Link)
  • Nuechterlein, A., Rotenberg, A., LeDue, J., Pavlidis, P., Illes, J. (2023). Open science in play and in tension with patent protections. Journal of Law and the Biosciences. (Link)
  • Schaffrick, M., Perreault, M.L., Harding, L., Illes, J. (2023). Recruitment and Engagement of Indigenous Peoples in Brain-Related Health Research. Neuroethics. (Link)
  • Nuechterlein, A., Barretto, T., Yehia, A., Illes, J. (2023). Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review. Research Integrity and Peer Review. (Link)

  • Perreault, M., Gabel, C., King, M., Mushquash, C., Ménard, C., Young, J., De Koninck, Y., Illes, J. (2022). An Indigenous lens on priorities for the Canadian Brain Research Strategy. CJNS. (Link)
  • Gunning, M., Rotenberg, A., Anderson, J. et al. (2022). Neither the "Devil's Lettuce" nor a "Miracle Cure:" The Use of Medical Cannabis in the Care of Children and Youth. Neuroethics. (Link)
  • Gunning, M., Rotenberg, A., Anderson, J., Balneaves, L.G., Brace, T., Crooks, B., Hall, W., Kelly, L.E. (2022). Clinician views and ethics priorities for authorizing medical cannabis in the care of youth: A qualitative Study. CMAJ Open. (Link)
  • Chiong, W., Tolchin, B., Bonnie, R.J., Busl, K.M., Cruz-Flores, S., Epstein, L.G., Greene, E.P., Illes, J., Kesselheim, A.S., Kirschen, M.P., Larriviere, D.G., Mantri, S., Rubin, M., Stern, B.J. Taylor, L.P., Ethical concerns raised by the FDA’s approval of aducanumab for Alzheimer’s disease, with recommendations for informed consent. Neurology. In Press.
  • Gilbert F, Viana J.…. Illes J, Invasive experimental brain surgery for dementia: Ethical shifts in clinical research practices? Bioethics. (Link)
  • Harding L, Marra C, Manohara, V, & Illes J. (2022). Ways of Knowing of the Brain and Mind: A Scoping Review of the Literature About Global Indigenous Perspectives. Journal Of Neurology Research. (Link)
  • Tindale LC, Chiu D, Minielly N, Hrincu V, Talhouk A and Illes J (2022) Wearable Biosensors in the Workplace: Perceptions and Perspectives. Front. Digit. Health. (Link)
  • Apantaku, G.O., McDonald, P.J., ... Illes, J. (2022). Clinician preferences for neurotechnologies in pediatric drug-resistant epilepsy: A discrete choice experiment. Epilepsia. (Link)
  • Alam, A., Parfyonov, M., ... Illes, J. (2022). Targeted Whole Exome Sequencing in Children With Early-Onset Epilepsy: Parent Experiences. Journal of Child Neurology. (Link)
  • The Neuroethics of Architecture. Illes J & Huang C. Developments in Neuroethics and Bioethics. In Press.
  • Nir Lipsman, Patrick J. McDonald & Judy Illes (2022) Perceptions of Invasiveness: A Moving Target for Neuromodulation. AJOB Neuroscience. (Link)
  • Boyle Q, Illes J, Simonetto D, van Donkelaar P. (2022). Ethicolegal considerations of screening for brain injury in women who have experience intimate partner violence. Journal of Law and the Biosciences. (Link)

  • Randhawa, J., Hrazdil, C., McDonald, P.J., Illes, J. A strategic and principled ethics approach to epilepsy monitoring unit triage. Journal of Medical Ethics, 2021, 0:1–6. (PDF)
  • Apakantu, G., Aguiar, M., Kaal, J.J., McDonald, P.J., Connolly, M., Hrincu, V., Illes, J.*, Harrison, M.*, A formative qualitative research approach to understanding attributes that influence physician and caregiver decisions about neurotechnology for pediatric drug resistant epilepsy. The Patient - Patient-Centered Outcomes Research, 2021. (PDF)
  • Chandler, J., Van der Loos, K.I., Boehnke, S., Buchman, D.Z., Beaudry, J.S., Illes, J., Building communication neurotechnology for high stakes communications, Nature Reviews Neuroscience, 2021. (PDF)
  • Gaudry, K.S., Ayaz, H., Bedows, A., Celnik, P., Eagleman, D., Grover, P., Illes, J., Rao, R.P.N., Robinson, J.T., Thyagarajan, K., and The Working Group on Brain-Interfacing Devices in 2040, Projections and the potential societal impact of the future of neurotechnologies, Frontiers in Neuroscience, 2021. (Link)
  • Chandler, J.A., … Illes, J. et al. A look at international legal approaches to neurosurgery for psychiatric disorders (NPD), Frontiers in Psychiatry, 2021, 14: 588458. doi: 10.3389/fnhum.2020.588458. (PDF).
  • Gunning, M., Illes, J. Coverage of medical cannabis by Canadian news media: Ethics, access, and policy. International Journal of Drug Policy, 2021, 97(103361): 1-8. doi.org/10.1016/j.drugpo.2021.103361. (PDF)
  • Harding, L., Marra, C.J., Illes, J., Establishing a comprehensive search strategy for Indigenous health literature reviews. BMC Systematic Reviews, 2021, 36:115. doi: 10.1186/s13643-021-01664-y. (PDF)
  • Udwadia, F., Hrincu, V.M., Connolly, M.B., McDonald, P.J., Illes, J., Youth weigh in: Views on advanced neurotechnology for drug resistant epilepsy. Journal of Child Neurology. 2021, 36(2):128-132. doi: 10.1177/0883073820957810.(PDF).
  • Beauvais, J.S., Knoppers, B.M., Illes, J. A marathon, not a sprint – Neuroimaging, open science and ethics, NeuroImage, 2021, 236:118041, 1-7 (PDF).
  • Ménard, C., Siddiqui, T.J., Sargin, D., De Koninck, Y., Illes, J. The Canadian Brain Research Strategy: A focus on early career investigators, Canadian Journal of Neurological Sciences, 2021, 00:  Can J Neurol Sci. 2021; 00: 1-3. (PDF).
  • Pfotenhauer, S., Winnikopf, D.,  Marchant, G. Frahm, N.M., Benrimoh, D., Illes, J.  Mobilizing the private sector for responsible innovation in neurotechnology (and beyond), Nature Biotechnology, 7 June 2021 (PDF).
  • Hrincu, V.M., Harrison, M., Connolly, M.B., McDonald, P.J., Naftel, R., Ibrahim, G., Chiong, W., Illes, J. Choice and trade-offs: Parent decision-making for neurotechnologies for pediatric drug resistant epilepsy, Journal of Child Neurology, 2021, 36(3): 222-229. (PDF)

  • Udwadia, F.R. and Illes, J., An ethicolegal analysis of involuntary treatment for opioid use disorders. Journal of Law, Medicine and Ethics. doi:10.1177/1073110520979383. (PDF).
  • Hrincu, V.M., Udwadia, F., Harrison, M., Connolly, M.B., Naftel, R., Ibrahim, G., Chiong, W., McDonald, P.J., Illes, J., Physician views on advanced neurotechnology for drug resistant epilepsy. Journal of Child Neurology, 2021, 36(3) 222-229. (PDF)
  • Palk., A., Illes, J., Thompson, P.H., Stein, D.J., Ethical issues in global imaging genetics collaborations. Neuroimage, 221, 2020,117208. (PDF)
  • Brown, K., Benjaminy, S., Illes, J. Deyell, R.J., Parent perspectives on information-seeking, trustworthiness, and decision-making in high-risk neuroblastoma. Journal of Pediatric Hematology and Oncology, 2020 Dec 2. (PDF)
  • Minielly, N., Feehan, C., Huang, A., Illes, J. Societal and neuroethical implications of COVID-19. Trends in Neuroscience, 2020.(PDF)
  • Harding, L., Illes, J., King, M., Resilience in Indigenous health research during COVID-19. Canadian Medical Association Journal, response published 16 December 2020. (Link)
  • Cameron, M., Illes, J. Politicians appeal to our sense of fairness in the battle against COVID-19. The Conversation, April 21, 2020. Reprinted in The Province, April 24, 2020, The London Press and The Owen Sound April 25, 2020. (PDF)
  • Rabin, J., Davidson, B., Giacobbe, P., Hamani, C., Cohn, M., Illes, J., Lipsman, N., Neuromodulation for major depressive disorder: A paradigm shift to capture efficacy and outcomes. Lancet Psychiatry, 2020, https://doi.org/10.1016/S2215-0366(20)30187-5. (PDF)
  • Cabrera L.Y., Courchesne C. Kiss, Z.H.T., Illes, J., Clinical perspectives on psychiatric neurosurgery. Stereotactic and Functional Neurosurgery, 2019, 97(5-6):391-398. http://doi:10.1159/000505080. (PDF)
  • Coates McCall., I., Minielly, N., Bethune, A., Lipsman, N., McDonald., P.J., llles, J. Readiness for first-in-human neuromodulatory interventions. Canadian Journal of Neurological Sciences, 2020; 00: 1–8. (PDF)
  • Illes, J., Lau, C. Connolly, M.B., Hrincu, V., McDonald, P.J., Ethically problematic medical device representation. American Journal of Bioethics, 2020, 20(8), 5-6. (PDF)
  • Cabrera L.Y., Courchesne C., Bittlinger M., Müller S., Martinez, R., Racine, E., and Illes, J.  Authentic Self and Last Resort Looking back and looking forward: Public perceptions of psychiatric neurosurgery. Journal of Culture, Medicine and Psychiatry, 2020, (PDF).
  • Harding, L., Illes, J. RE: Canadian Assessment of Deep Brain Stimulation Access: The Canada Study. Canadian Journal of Neurological Sciences. (PDF)
  • McFarlane, J., Illes, J., Neuroethics at the interface of machine learning and schizophrenia. Nature Schizophrenia, 2020, 6:18, https://doi.org/10.1038/s41537-020-0108-6. (PDF)
  • Cabrera L.Y., Courchesne C., Bittlinger M., Müller S., Martinez, R., Racine, E., and Illes, J. Looking back and looking forward: Public perceptions of psychiatric neurosurgery in Canada, Germany and Spain. Journal of Culture, Medicine and Psychiatry. (PDF)
  • Kaal, K.J., Harrison, M., Aguiar, M., McDonald, P.J., Illes, J., The clinical research landscape of pediatric drug resistant epilepsy. Journal of Child Neurology, 2020. (PDF)
  • Munjal, V., Arakelyan, M., Hrincu, V.M., McDonald. P.J., Illes, J. Paediatric epilepsy through the lens of news media. Epilepsy and Behavior, 2020, 111, 107200. (PDF)
  • McGuire, A.L., Aulisio, M.P., Davis, F.D., Erwin, C., Harter, T.D., Jagsi, R., Klitzman, R., Macauley, R. Racine, E., Wolf, S., Wynia, M., Wolpe, P., and The COVID-19 Task Force of the Association of Bioethics Program Directors (ABPD), Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force. American Journal of Bioethics, 2020. (PDF)
  • Feehan, C., Illes, J. The hidden risks of pre-traumatic stress. Royal Society of Canada and Globe and Mail Zero Canada Project. May 10, 2020. (PDF)
  • Erwin,C., Aultman, J. Harter, T., Illes, J., Kogan, C.J., Ethics issues in rural and remote communities. American Journal of Bioethics, 2020. (PDF)
  • Minielly, N., Hrincu, V., Illes, J., Privacy Challenges to the Democratization of Brain Data. iScience, 2020(PDF)
  • Rossi, F., Illes, J. and the Stem Cell Working Group, Closing gaps, opening doors: An experimental collaboration in stem cell intervention. Molecular Biology Reports, 2020, 47(5): 4105–4108. (PDF)
  • International Brain Initiative Strategy Committee, Establishment of the International Brain Initiative. Neuron. 105, 212-216, 2020. (PDF)

  • McDonald, P.J., Lau, C., Coates McCall, I., Illes, J., Regulatory oversights for implantable neurodevices. The Lancet Neurology, 2019, 18, 913. (PDF)
  • Radic, J.A.E., Illes, J., McDonald, P.J., Fetal repair of open neural tube defects: Ethical, legal and social issues. Cambridge Quarterly Healthcare Ethics, 2019, 28: 476–487. (PDF)
  • Kellmeyer. P., Chandler, J. Cabrera, L., Carter, A., Kreitmair, K., Weiss, A., Illes, J., Neuroethics at 15: The current and future environment for neuroethics. AJoB Neuroscience, 10(3): 104–110, 2019. (PDF)
  • Illes, J. and Lou, H., A cross-cultural neuroethics view on the language of disability, AJoB Neuroscience, 10(2): 75–84, 2019. (PDF)
  • Roskams-Edris D., Anderson-Redick S., Illes J., Kiss Z.H.T., Medical methods patents in neuromodulation. Neuromodulation, 2019; 22: 398–402. E-pub ahead of print. DOI:10.1111/ner.12919. (PDF)
  • Illes, J., Weiss, S., Bains, J., Chandler, J.A., Conrod, P., De Koninck, Y., Fellows, L.K., Groetzinger, D., Racine, E., Robillard, J.M., Sokolowski, M.B. A., Neuroethics backbone for the evolving Canadian Brain Research Strategy. Neuron, 101, 370-374. (PDF)
  • Coates McCall, I., Lou, H., Lau, C., Illes, J., Owning ethical innovation: Claims about commercial brain wearable technologies. Neuron, May 22, 2019, 102, 728-731. (PDF)
  • Benjaminy, S., Lo, C., Traboulsee, A., Illes, J., Perspectives about timeframes in stem cell research for multiple sclerosis. International Journal of Multiple Sclerosis Care, 21(4):185-193, 2019. (PDF)
  • Illes, J., Kiss, Z., Roskams-Edris, D., Anderson-Redick, S., No claims on brains: A reply to Kuersten and Wexler, Nature Biotechnology, 37(1), 19. (PDF)

  • Zarzeczny, A., Atkins, H., Illes, J., Caulfield, C., The stem cell market & policy options: A need for clarity & realistic hope. Journal of Law and the Biosciences, 2018; 5:743-758. doi.org/10.1093/jlb/lsy025. (PDF)
  • Traboulsee, A., Machan, L., Girard, L., Raymond, J., MD; Vosoughi, R., Hardy, B.W., Emond, F., Gariepy, J-L., Bone, B.N., Siskin, G.P., Klass, D., Isserow, S., Illes, J., Sadovnick, A.D., Safety and efficacy of jugular and azygos venoplasty in multiple sclerosis: a randomized, double blind, sham-controlled phase II trial. Neurology, 2018;91:815-816. doi:10.1212/WNL.0000000000006419. (PDF)
  • Global Neuroethics Summit Delegates, Rommelfanger K.S., Jeong, S.J., Ema, A., Fukushi, T., Kasai, K., Ramos, K.M., Salles, A., Singh, I., Neuroethics questions to guide ethical research in the brain projects: A cross-cultural approach. Neuron, 100, 10, 2018, 19-36. (PDF)
  • Fins, J.J., Illes, J., Pragmatic convergence and the epistemology of an adolescent neuroethics, In: J. Chandler [Ed.] Competing Identities of Neuroethics. Clinical Neuroethics, 2018, 27, 554–557. doi:10.1017/S0963180118000075. (PDF)
  • Cabrera, L.Y., Lou, H., Bittlinger, T.M., Muller, S., Illes, J., Reader comments to media reports on psychiatric neurosurgery: Past history casts shadows on the future. Acta Neurochirgica, 2018, https://doi.org/10.1007/s00701-018-3696-4 (PDF)
  • Kaal, J.K., Harrison, M., Whitehurst, D.G.T., Townson, A., Dance, D., Stoessl, A.J., Illes, J., Commentary and Follow-up: Operationalizing Neuroimaging for Disorders of Consciousness in the Canadian Context. Canadian Journal of Neurological Sciences, 2018, 00, 1-3, DOI: https://doi.org/10.1017/cjn.2018.316. (PDF)
  • Benjaminy, S., Traboulsee, A., Illes, J., Resilience, trust, and civic engagement in the Post-CCSVI era. BMC Health Services Research, 2018, DOI: 10.1186/s12913-018-3130-x. (PDF)
  • Benjaminy, S., Lo, C., Illes, J*., Traboulsee, A.*, Reflections on translation: Views of participants in a multi-site Canadian CCSVI clinical trial. Neurology Clinical Practice, 2018, 8(3), 232-239. doi:10.1212/CPJ.0000000000000462 (PDF)
  • Matsson, I., Illes, J., Ethics and the neurological effects of water contamination by methylmercury. Canadian Journal of Undergraduate Research, April 2018. (PDF)
  • Cabrera, L.Y., Lou, H., Bittlinger, T.M., Muller, S., Illes, J., Contemporary media coverage of psychiatric neurosurgery: Insights from a cross-national comparison. Acta Neurochirgica. 2017,160(3):625-635. DOI org/10.1007/s00701-017-3428-1. (PDF)
  • Gilbert, F., Cook, M., O’Brien, T., Illes, J., Losing control over brain computer interfaces: Results from first-in-human trial. Science and Engineering Ethics. 2017. DOI 10.1007/s11948-017-0001-5. (PDF)
  • Illes, J., McDonald, P., Head transplants: Ghoulish takes on new definition. American Journal of Bioethics Neuroscience, 2017, 8(4): 211–242. (PDF)
  • Yuste, R., Goering, S., Agüera y Arcas, B., Bi, G., Carmena, J., Carter, A., Fins, J.J., Friesen, P., Gallant, J., Grady, C., Huggins, Illes, J., Kellmeyer, P. Klein, E., Marblestone, A., Mitchell C., Parens, E., Pham, M., Ramos K., Rubel, A., Sadato, N., Specker Sullivan, L., Teicher, M., Wasserman, D., Wexler, A., Whittker, M., Wolpaw, J., Comment: Ethical guidelines for neurotechnologies and machine Intelligence. Nature, 2017, 160(551):159-163. (PDF) (link)
  • Cabrera, L.Y., Illes, J., Stimulating consciousness: At the intersection of innovation and ethics. The Lancet Neurology. 2017.
  • Specker., Illes, J., Ethics in published brain computer interface research. Journal of Neural Engineering. 2017, Sep 21. doi: 10.1088/1741-2552/aa8e05. [Epub ahead of print] PubMed PMID: 28931749. (PDF)

  • Shriver, A.J., Cabrera, L.Y., Illes, J., Environmental neuroethics: Bridging environmental ethics and mental health. American Journal of Bioethics, 2017, 17(9): 26-27. DOI: 10.1080/15265161.2017.1353172 (PDF)
  • Illes, J., Benjaminy, S., Isasi, R., Lomax, G., Master, Z., McCabe, C., McCormick, J. Ogbogu, U., Ravitsky, V., Robillard, J.M., Rossi, F., Wilson, B., Zarzeczny, A., A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine. Nature Regenerative Medicine, 2017, (2017) 2:21, DOI:10.1038/s41536-017-0026-z. (PDF)
  • Whiteley, L.M., Borgelt, E., Stewart, E., Illes, J., Parent perspectives on biomarkers for OCD: Talking of difficult presents, desired pasts, and imagined futures. BioSocieties, 2017, DOI:10.1057/s41292-017-0046-3. (PDF)
  • Knoppers, B.M., Isasi, R., Caulfield, T., Kleiderman, E., Illes, J., Ogbogu, U., V., Rudnicki, M., Human gene editing: Revisiting Canadian policy. Nature – Regenerative Medicine, 2017, 2:3. (PDF)
  • Cabral, M., Illes, J., The catch-22 of neuroimaging, disorders of consciousness, and end-of-life decisions. JAMA (Neurology), jamanetwork/2017/neu/03_06_2017/nv160014pap. (PDF)
  • Edris-Roskams, D., Anderson-Redick, S., Kiss, Z*. Illes, J*., Situating Brain Regions Among Patent Rights and Moral Risks, Nature Biotechnology [Patents], 2017, 35(2):1-3. (*co-lead authors). (PDF)

  • Robillard, J.M., Illes, J., Medicine and Society – Manipulating memories: The ethics of yesterday’s science fiction and today’s reality, American Medical Association, 2016, 18(12):1225-1231. (PDF)
  • Di Pietro, N.C., Illes, J., Closing gaps: Strength-based approaches to research with Aboriginal children with neurodevelopmental disorders, Neuroethics, 2016, 10(10): DOI 10.1007/s12152-016-9281-8. (PDF)
  • Moses, T., Illes, J., Ethics, ethicists, and professional organizations in the neurological sciences, American Journal of Bioethics – Neurosciences. 8:1, 3-11. (PDF)
  • Byram, A.C., Lee, G., Owen, A.M., Ribary, U., Stoessl, A.J., Townson, A., Illes, J., Ethical and Clinical Considerations at the Intersection of Functional Neuroimaging and Disorders of Consciousness: The Experts Weigh In. Cambridge Quarterly of Healthcare Ethics. 2016, 25(4), pp. 613–622. doi: 10.1017/S0963180116000347. (PDF)
  • Specker Sullivan, L., Illes, J., Beyond ‘communication and control’: Towards ethically complete rationales for brain-computer interface research. Brain-Computer Interfaces, 2016, 3(3):156–163. (PDF)
  • Di Pietro, N., De Vries, J., Paolozza, A., Reid, D., Reynolds, J.N., Salmon, A., Wilson, M., Stein, D.J., Illes, J.,  Ethical Challenges in Contemporary FASD Research and Practice: A Global Health Perspective. Cambridge Quarterly of Healthcare Ethics. 2016, 25(4), 726–732. doi:10.1017/S096318011600044X (PDF)
  • Sharpe, K., Di Pietro, N., Jacob, K. J., Illes, J., A dichotomy of information-seeking and information-trusting: Stem cell interventions and children with neurodevelopmental disorders. Stem Cell Reviews and Reports. 2016, 12(4), 438–47. (PDF)
  • Sharpe, K., Di Pietro, N., Mc Glanaghy, E., Illes, J., In the know and in the news: How science and the media inform the public about stem cells for autism and cerebral palsy. Stem Cell Reviews and Reports. 2016, 12(1), 1-7. (PDF)
  • Cabrera, L., Tesluk, J., Matthews, R., Chakraborti, M., Illes, J., Brain matters: From environmental ethics to environmental neuroethics. Environmental Health. 2016,15:20-25. (PDF)
  • Benjaminy, S., Lo, C., Illes, J., Social responsibility in stem cell research - Is the news all bad? Stem Cells Reviews and Reports, 2016, DOI 10.1007/s12015-016-9646-8. (PDF)
  • Illes, J., Owen, A.M., Byram, A.C., and the MCS Working Group, Operationalizing neuroimaging for disorders of consciousness in the face of uncertainty and contingency: A view for the Canadian landscape. Can J Neurol Sci., 2016, 1-3. (PDF)

Books (by year):

  • Illes, J. (Series Editor) Series: Developments in Neuroethics and Biomedicine, Elsevier Press, San Diego (Buchman, D.Z. and Davis, K. Pain Neuroethics, Volume 1, 2018; Radden, J., and Crastley, K., Ethics in Global Mental Health, Volume 2, 2019; Bard, I. and Hildt, E., Do It Yourself Neurotechnology, Volume 3, Elsevier, San Diego 2020.
  • Cratsley, K. Radden, J., Illes, J. (Ed.), Mental Health as Public Health: Interdisciplinary Perspectives on the Ethics of Prevention, Academic Press, Elsevier, Cambridge, MA, USA, September 2019.
  • Illes, J. (Ed.) Neuroethics: Anticipating the Future, Oxford University Press, Oxford, UK, July 2017.

Book chapters (by year):

  • Ibrahim, G.M., Kiss, Z., Meng, Y., Sankar, T., Weise, L., From vision to action: Canadian leadership in ethics and neurotechnology. In: E. Moro, M. Polosan, and C. Hamani [Eds.] Emerging Horizons in Neuromodulation: New Frontiers in Brain and Spine Stimulation, Volume 158, In press.
  • Illes, J., Lipsman, N., McDonald, P.J., Hrincu, V., Chandler, J., Fasano, A., Giacobbe, P., Hamani, C., Ibrahim, G.M., Kiss, Z., Meng, Y., Sankar, T., Weise, L., From vision to action: Canadian leadership in ethics and neurotechnology. In:  E. Moro, M. Polosan, and C. Hamani [Eds.] Emerging Horizons in Neuromodulation: New Frontiers in Brain and Spine Stimulation, Volume 158, In press.
  • Boyle, Q., van Donkelaar, P., Illes, J. Methods of neuroethics, In: Della Sala [Ed.], Encyclopedia of Behavioural Neuroscience 2e. New York, 2021, In press.

  • Minielly, N., Hrincu, V.M., Illes, J., A view on incidental findings and adverse events associated with neurowearables in the consumer marketplace, Developments in Neuroethics and Bioethics. Academic Press, Elsevier, (Massachusetts), April 2020.
  • Hrincu, V.M., Courchesne, C., Lau, C., Illes, J., Contemporary neuroethics, Encyclopedia of Behavioural Neuroscience. Springer (New York), 2020. (Link)

  • Rahimzadeh, V., Bartlett, G., Longo, C., Illes, J., Interactive role-playing and health-related quality of life assessment in children with neurocognitive sequelae:  A global neuroethics research approach, In: D. Stein and I. Singh [Eds.] Global Mental Health. Springer, 2018, In Press.
  • Illes, J., Antle, A., Lou, H., Longstaff, H., Rahimzadeh, V., McDonald, P.J., Van der Loos, H.F.M., KBHN Workshop Participants, Recruiting children with neurodevelopmental disorders to biomedical research. The Lancet Child and Adolescent Health. 2019, www.thelancet.com/child-adolescent. Published online January 25, 2019 http://dx.doi.org/10.1016/S2352-4642(19)30022-7. (Link)
  • Courchesne, C., Illes, J. Response to Sankary and Ford: The inverse problematic to consent and loss of capacity, In. A. Cascio and E. Racine [Eds.], Research Involving Participants with Impaired Cognition: Ethics, Autonomy, Inclusion, and Innovation. Oxford University Press, 2019, 215-221. (Link)
  • Dubljevic, V. Coates McCall, I., Illes, J., Neuroenhancement at work: Addressing the ethical, legal, and social implications, In: E. Racine [Ed.] Organizational Neuroethics, Springer, New York, 2019, 87-103. (Link)
  • Illes, J., Kiss, Z., Roskams-Edris, D., Anderson-Redick, S., No claims on brains: A reply to Kuersten and Wexler, Nature Biotechnology, 2019, 37(1), 19. (PDF)

Tesluk, J., Illes, J., Matthews, R., First Nations and environmental neuroethics: Perspectives on brain health from a world of change. In: J. Illes [Ed.] Neuroethics: Anticipating the Future, Oxford Press, Oxford, UK, 2017, 455-476.
  • Illes, J., Hossain, S. Introduction part I: Looking forward. In: J. Illes [Ed.] Neuroethics: Anticipating the Future, Oxford Press, Oxford, UK, 2017, vii-viii. (Link)
  • Illes, J. Introduction part II: Looking back – Neuroethics: A model for the reciprocal relationship between values and understanding. In: J. Illes [Ed.] Neuroethics: Anticipating the Future, Oxford Press, Oxford, UK, 2017, ix-xvi. (Link)
  • Specker Sullivan, L., Illes, J. Models of engagement in neuroethics programs: Past, present, and future. In E. Racine and J. Aspler [Eds.] The Debate about Neuroethics: Perspectives on the Field’s Development, Focus, and Future. Springer, 2017:165-181. (Link)
  • Fins, J.J., Illes, J. Pragmatic convergence and the epistemology of an adolescent neuroethics, In: J. Chandler [Ed.] Competing Identities of Neuroethics, Clinical Neuroethics. (PDF)

Recent Publications (by year):

  • Wu, J.M., Tam, M.T., Buch, K., Khairati, F., Wilson, L., Bannerman, E., Guerrero, A., Eisen, A., Toyer, W., Stevenson, T., Robillard, J.M. (2022). The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study. BMC Palliative Care. (Link)
  • Wu, J.M., Tam, M.T., Page, P.M., Lamb, E.A., Jordan, I., Chambers, C.T., Robillard, J.M. (2022). Pain management communication between parents and nurses after pediatric outpatient surgery. Journal of Pediatric Nursing. (Link)
  • Tam, M.T., Dosso, J.A., Robillard, J.M. (2022). Community and Provider Evaluation of a Canadian Dementia Support Services Program. Canadian Geriatrics Journal. (Link)
  • Jicha, G.A., Abner, E., Arnold, S.E., Carrillo, M.C., Dodge, H., Edland, S., Fargo, K., Feldman, H., Goldstein, L.B., Hendrix, J., Peters, R., Robillard, J.M., Schneider, L., Titiner, J.R., Weber, C.J. (2022). Committee on High-quality Alzheimer’s Disease Studies (CHADS) Consensus Report. Alzheimer’s & Dementia. (Link)
  • Watersone, R., Robillard, J.M., Prescott, T.J. (2022) Robot telepresence as a practical tool for responsible and open research in trustworthy autonomous systems. Journal of Responsible Technology. (Link)
  • Wood, M.D., West, M.C.,  Sreepada, R.S., Loftsgard, K.C., Petersen, L.,  Robillard, J.M., Page, P., Ridgway, R., Chadha, N.K., Portales-Casamar, E., Görges, M. and the Pediatric Pain Prediction Collaboration (2022). Identifying Risk Factors, Patient-Reported Experience and Outcome Measures, and Data Capture Tools for an Individualized Pain Prediction Tool in Pediatrics: Focus Group Study. JMIR Perioperative Medicine. (Link)
  • Prescott, M., Gamache, S., Mortenson, W.B., Best, K.L., Grandisson, M., Mostafavi, M.A., Labbe, D., Morales, E., Mahmood, A., Borisoff, J., Sawatzky, B., Miller, W.C., Bulk, L.Y., Robillard, J.M., Routhier, F. (2022). Providing accessible recreation outdoors – user-driven research on standards: protocol for mobile and web-based interviews for winter assessments. JMIR Research Protocols. (Link)
  • Hrincu, V., An, Z., Joseph, K., Jiang, Y.F., Robillard, J.M. (2022). Dementia research on Facebook and Twitter: current practices and challenges. Journal of Alzheimer’s Disease. (Link)
  • Boccardi, M., Handels, R., Gold, M., Grazia, A., Lutz, M.W., Martin, M., Nosheny, R., Robillard, J.M., Weidner, W., Alexandersson, J., Thyrian, J.R., Winblad, B., Barbarino, P., Khachaturian, A., Teipel, S. (2022). Clinical research in dementia: a perspective on implementing innovation. Alzheimer’s & Dementia. (Link)
  • Jimenez-Rodriguez, A., Robillard, J.M., Prescott, T.J. (2022). Cognitive architecture as a service: scaffolded integration of heterogeneous models through event streams. Conference on Biomimetic and Biohybrid Systems. (Link)
  • Prescott, T.J. & Robillard, J.M. (2022). Designing socially-assistive robots: a relational approach. ICCHP-AAATE. (Link)
  • Kabacinska, K., Vu, J., Tam, M., Edwards, O., Miller, W.C., Robillard, J.M. (2022). ‘Functioning better is doing better’: older adults’ priorities for the evaluation of assistive technology. Assistive Technology. (Link)
  • Dosso, J.A., Bandari, E., Malhotra, A., Guerra, G.K., Hoey, J., Michaud, F., Prescott, T.J., Robillard, J.M. (2022). User perspectives on emotionally aligned social robots for older adults and persons living with dementia. Journal of Rehabilitation and Assistive Technology Engineering. (Link)
  • Kabacinska, K., McLeod, K., MacKenzie, A., Vu, K., Cianfrone, M., Tugwell, A., Robillard, J.M. (2022). What criteria are young people using to select mobile mental health applications? A nominal group study. Digital Health. (Link)

  • Robillard, J.M., Feng, T.L., Kabacinska, K. (2021) Access to genetic testing for rare diseases: existing gaps in public-facing information. World Medical & Health Policy, 1-8. (Link)
  • Tam, M.T., Gauthier, S., Ng, K.P., Everett, F., Robillard J.M. (2020) Facilitating recruitment for dementia research: insights from an international panel. Dementia 20(3), 1182-86. (Link)
  • Tam M.T., Dosso J.A., Robillard J.M. (2021). The impact of a global pandemic on people living with dementia and their care partners: analysis of 417 lived experience reports. Journal of Alzheimer’s Disease 80(2), 865-75. (PDF)
  • Gibbard, M., Zivkovic, I., Jivraj, B., Schaeffer, E., Robillard, J.M., Mulpuri, K. (2021). A global survey of patient and caregiver experiences throughout care or developmental dysplasia of the hip. Journal of Pediatric Orthopedics 41(6), e392-97. (Link)
  • Reid, H., Mohammadi, S., Watson, W., Robillard J.M., Crocker, M., Westby, M.D., Miller, W.C. (2021). Patient and caregiver perspectives on an eHealth tool: a qualitative investigation of preferred formats, features and characteristics of a presurgical eHealth education module. Rehabilitation Process and Outcome10, 1-13. (Link)
  • Wang, R.H., Kenyon, L.K., McGilton, K.S., Miller, W.C., Hovanec, N., Boger, J., Viswanathan, P., Robillard, J.M., Czarnuch, S.M. (2021). The time is now: a FASTER approach to generate research evidence for technology-based interventions in the field of disability and rehabilitation. In press, Archives of Physical Medicine and Rehabilitation. (Link)
  • Kodali, N., Sidhu, B.V., Schaeffer, E.K., So, J., Habib, E., Robillard, J.M., Mulpuri, K. (2021). Content analysis of information about developmental dysplasia of the hip on Twitter. Indian Journal of Orthopaedics. (PDF)
  • Prescott, M., Routhier, F., Labbe, D., Grandisson, M., Mahmood, A., Morales, E., Best, K.L., Mostafavi, M., Borisoff, J., Gamache, S., Sawatzky, B., Miller, W.C., Bulk, L.Y., Robillard, J.M., Jenkins, H.T., Seetharaman, K.R., Mortenson, B. (2021). Providing Accessible ReCreation Outdoors: User-driven Research on Standards (PARCOURS) – protocol for a multi-phase study. Journal of Medical Internet Research Protocols. (PDF)

  • Ghafurian, M., Hoey, J., Tchorni, D., Ang, A., Tam, M., Bal, P., Robillard, J.M. (2020) Impact of perceived identities on acceptance in older adults. In Press, Pervasive Health.
  • Tam, M.T., Wu, J.M., Page, P.M., Lamb, E.A., Jordan, I., Chambers, C.T., Robillard, J.M. (2020) Barriers and facilitators to effective pain management by parents after pediatric outpatient surgery. The Journal of Pediatric Health Care. (PDF)
  • Kabacinska, K., Prescott, T.J., Robillard, J.M. (2020) Socially assistive robots as mental health interventions for children: a scoping review. International Journal of Social Robotics. (PDF)
  • Robillard, J.M., Goldman, I.P., Prescott, T.J., Michaud, F. (2020) Addressing the ethics of telepresence applications through end-user engagement. Journal of Alzheimer’s Disease 76(2):457-60. (PDF)
  • Kabacinska, K., Robillard, J.M. (2020) Realizing the potential of robotics for aging care through co-creation. Journal of Alzheimer’s Disease 76(2):461-66. (PDF)
  • Robillard, J.M., Bourne, S.C., Tam, M.T., Page, P.M., Lamb, E.A., Gogal, C., Skarsgard, E.D., Afshar, K. (2020) Improving the pediatric surgery patient experience: an 8-year analysis of narrative quality data. BMJ Open Quality 9:e000924. (PDF)
  • Kabacinska, K., Sharma, N., Kaye, J., Mattek, N., Kuzeljevic, B., Robillard, J.M. (2020) Investigating the concept of participant burden in aging technology research. BMC Geriatrics 20:50. (PDF)
  • Tao, G., Charm, G., Kabacinska, K., Miller, W.C., Robillard, J.M. (2020) Evaluation tools of assistive technologies: a scoping review. Archives of Physical Medicine and Rehabilitation 101(6):1025-40. (PDF)

  • Robillard, J.M., Feng, T.L., Sporn, A.B., Lai, J.A., Lo, C., Ta, M., Nadler, R., (2019) Availability, readability, and content of privacy policies and terms of agreements of mental health apps. Internet Interventions. doi: 10.1016/j.invent.2019.100243 (PDF)
  • Prescott, T.J. & Robillard, J.M. (2019.) Robotic automation can improve the lives of people who need social care. The BMJ. doi.org/10.1136/bmj.l62 (PDF)

  • Tougas, M.E., Chambers, C.T., Corkum, P., Robillard, J.M., Gruzd, A., Howard, V., Kampen, A., Boerner, K., Hundert, A., (2018) An examination of social media content about children's health. In Press, Journal of Medical Internet Research Pediatrics and Parenting. (Link)
  • Zarzeczny, A., Atkins, H., Illes, J., Kimmelman, J., Master, Z., Robillard, J.M., Snyder, J., Turner, L., Zettler, P., Caulfield, T., (2018) The stem cell market and policy options: a call for clarity. Journal of Law and the Biosciences. (PDF)
  • Robillard, J.M., Jun, J.H., Lai, J.A., Feng, T.L., (2018) The QUEST for quality online health information: development and validation of a novel, short and quantitative tool. BMC Medical Informatics and Decision-making 18(1):87. (PDF)
  • Robillard, J.M., Cleland, I., Hoey, J., Nugent, C., (2018) Ethical adoption: a new imperative in the development of technology for dementia. Alzheimer’s & Dementia 14(9):1104-13. (PDF)
  • Robillard, J.M., Lai, J.A., Wu, J.M., Feng, T.L., Hayden, S., (2018) Patient perspectives on the experience of computerized cognitive screening in a clinical setting. Alzheimer’s & Dementia: Translational Research and Clinical Implications 4:297-303. (PDF)
  • Gold, M., Amatniek, J., Carrillo, M.C., Cedarbaum, J.M., Hendrix, J.A., Miller, B.B., Robillard, J.M., Rice, J.J., Soares, H., Tome, M.B., Tarnanas, I., Vargas, G., Bain, L.J., Czaja, S.J., (2018) Digital technologies as biomarkers, clinical outcomes assessment and recruitment tools in Alzheimer’s Disease Clinical Trials. Alzheimer’s & Dementia: Translational Research and Clinical Implications 4:234-42. (PDF)
  • Teipel, S., Konig, A., Hoey, J., Kaye, J., Kruger, F., Robillard, J.M., Kirste, T., Babiloni, C., (2018) Home-based pervasive information and communication technology provides real world evidence for future clinical trials in dementia. Alzheimer's & Dementia 14(9):1216-31. (PDF)
  • Robillard, J.M., Sporn, A.B., (2018). Static vs interactive online resources about dementia: a comparison of readability scores. Gerontotechnology, 17(1):29-37. (PDF)
  • Robillard, J.M., Hoey, J., (2018) Emotion and motivation in cognitive assistive technologies for dementia. IEEE Computer, 51(3):24-34. (PDF)

  • Robillard, J.M., Feng, T.L., (2017) When patient engagement and research ethics collide: lessons from a dementia forum. Journal of Alzheimer’s Disease, 59(1):1-10. (PDF)
  • Robillard, J.M., (2017) [Invited editorial] Who is to blame? Medical hype in the media. Movement Disorders, 32(10):1345-47. (PDF)
  • Konig, A., Francis, L.E., Joshi, J., Robillard, J.M., Hoey, J., (2017) Qualitative study of affective identities in dementia patients for the design of cognitive assistive technologies. Journal of Rehabilitation and Assistive Technologies Engineering, 4:1-15. (PDF)
  • Robillard, J.M., Alhothali, A., Varma, S., Hoey, J., (2017) Intelligent and affectively aligned evaluation of online health information for older adults. Proceedings of the 31st Association for the Advancement of Artificial Intelligence (AAAI) Conference on Artificial Intelligence, San Francisco, February 2017. (PDF)

  • Robillard, J.M., Illes, J., (2016) [Invited editorial] Manipulating memories: the ethics of yesterday’s science fiction and today’s reality. American Medical Association Journal of Ethics. 18(12):1225. (PDF)
  • Robillard, J.M., Lo, C., Feng, T.L., Hennessy, C., (2016) "A Light Switch in the #Brain": Optogenetics on Social Media. Neuroethics, doi:10.1007/s12152-016-9276-5. (PDF)
  • Robillard, J.M., (2016) The online environment: a key variable in the ethical response to complementary and alternative medicine for Alzheimer disease. Journal of Alzheimer Disease, 51(1):11-3. (PDF)

Publications (by project):

  • Robillard, J.M., (2016) The online environment: a key variable in the ethical response to complementary and alternative medicine for Alzheimer disease. Journal of Alzheimer Disease, 51(1):11-3. (PDF)
  • Robillard, J.M., Illes, J., Arcand, M., Beattie, B.L., Hayden, S., Lawrence, P., McGrenere, J., Reiner, P.B., Wittenberg, D., Jacova, C., (2015) Scientific validity and ethics of online tests for Alzheimer disease. Alzheimer’s Disease and Dementia: Diagnosis, Assessment and Disease Monitoring, 1(3):281-8. (PDF)
  • Robillard, J.M., Johnson, T.W., Hennessey, C., Beattie, B.L., Illes, J., (2013) Aging 2.0: Health information about dementia on Twitter. PLoS One. Jul 26;8(7):e69861. (PDF)
  • Robillard, J.M., Federico, C.A., Tairyan, K., Ivinson, A.J., Illes, J., (2011) Untapped ethical resources for neurodegeneration. BMC Medical Ethics. 12:9. (HTML ver.)

  • Robillard, J.M., Cabral, E., Hennessey, C., Kwon, B.K., Illes, J., (2015) Fueling hope: Stem cells in social media. Stem Cell Reviews and Reports. 11(4):540-6. (PDF)
  • Robillard, J.M., (2015) Communicating in context: A priority for gene therapy researchers.  Expert Opinion on Biological Therapy 15(3):315-8. (PDF)
  • Robillard, J.M., Roskams-Edris, D., Kuzeljevic, B., Illes, J., (2014) Prevailing public perceptions of the ethics of gene therapy. Human Gene Therapy. 25(8):740-6. (PDF)
  • Robillard, J.M., Whiteley, L., Johnson, T.M., Lim, J., Wasserman, W.W., Illes, J., (2012) Gene therapy: Capturing hopes and fears through an online Q&A platform. Journal of Medical Internet Research. 15(3):e44. (HTML ver.)

  • Robillard, J.M., Illes, J., (2011) A link in the ink: mental illness and criminal responsibility in the media. Journal of Ethics in Mental Health. 6:1-7. (PDF)

Recent Publications (by year):

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  • De Lotbiniere-Bassett, M.P., McDonald, P.J., Industry Financial Relationships in Neurosurgery in 2015: Analysis of the Sunshine Act Open Payments Database, World Surgery, 2018; 114: e925-5. (PDF)

  • McDonald, P.J., Medical Assistance in Dying: What Does It Mean for Neurologists and Neurosurgeons?, Canadian Journal of Neurological Sciences, 2017; 44: 629-630 (PDF)

  • Ellis, M.J., McDonald, P.J., Cordingly, D., Mansouri, B., Ritchie, L., Retirement from sport - Considerations following pediatric sports-related concussion: Case illustrations and institutional approach. Neurosurg Focus, 40(4):E8, 2016. (PDF)
  • Ellis, M.J., Ritchie, L., Selci, E., Chu, S., McDonald, P.J., Russell, K., Googling concussion care: a critical appraisal of online concussion healthcare providers and practices in Canada. Clin J Sport Med, 2016. 27(2):179-182. doi: 10.1097/JSM.0000000000000305 (PDF)
  • McDonald, P.J., Ventriculoperitoneal shunt failure from spontaneous knotting of the peritoneal catheter. CMAJ, 188(5):E97, 2016. (PDF)
  • Steinbok, P., Gopalakrishnan, C.V., Hengel, A.R., Vitali, A.M., McDonald, P.J., Hukin, J, et. al., Pediatric thalamic tumors in the MRI era: a Canadian perspective. Childs Nerv Syst, 32(2): 269-80, 2016. (PDF)
  • Zeiler, F.A., Janik, M.K., McDonald, P.J., Kaufmann, A.M., Fewer, D., Butler, J., Schroeder, G., West, M., Gamma Knife radiosurgery for pediatric arteriovenous malformations: a Canadian experience. Can J Neurol Sci, 43(1):82-6, 2016.(PDF)

Non-medical Publications:

  • McDonald P.J., Helmets save cyclists’ brains. Winnipeg Free Press, June 29, 2010, p A19. (Link)
  • McDonald P.J., There’s a bug in your head. in Klass, P., Real Life of a Pediatrician. Kaplan Publishing 2009, p 129-30.

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