Can new technology bring hope to children who have drug-resistant epilepsy?
More than 500,000 children in Canada and the USA have epilepsy. About a third of those children continue to have seizures despite taking anti-seizure medications, also known as pediatric drug resistant epilepsy (DRE). Surgery may be one option for them, but what if there is another option that is less invasive or more effective? What if new technology can bring hope to children who have DRE?
ABOUT SEIZING HOPE
Families with children suffering from pediatric drug resistant epilepsy (DRE) face complex realities. In a world guided by the promises of technology, the goal of Seizing Hope is to raise awareness about the options offered by different technologies specifically for the brain in complement or as an alternative to treatment with medication. As the directors and producers of this mini-documentary, we want to empower and improve decision-making by exploring values and priorities through the lens of the families and doctors who care for them. We compiled the stories of four families with children who have pediatric DRE to shed light on their hope, trust, and empowerment journey.
The views and research presented in this documentary represent a multi-year neuroethics project funded by the National Institute of Mental Health of the USA National Institutes of Health, BRAIN Initiative.
Neuroethics Canada UBC, with funding from the NIH/NIMH BRAIN Initiative (#RF1MH117805-01) in association with Conexkt Innovation Studio And Cassiar Film CO. present Seizing Hope.
Featuring the Bagg, Chartrand, Thompson, and Cowin families.
Executive Producers Dr. Judy Illes and Dr. Patrick J. McDonald.
Produced by Dr. Johann Roduit. Directed by Adam Wormald.
Learn more at https://www.seizinghopefilm.com/
For more pediatric drug resistant epilepsy and neurotechnological treatments resource materials, please visit: https://neuroethics.med.ubc.ca/res/nih-epilepsy-resources/
UPCOMING SCREENING EVENTS:
- Mon, Oct 3, 2022, 4:00PM PDT: Special film screening event at the BC Children’s Hospital (Link)
- Thu, Nov 17, 2022, 5:00PM PST: Special film screening event at Kitimat, BC (Link to follow)
PAST SCREENING EVENTS:
- Wed, Jul 6, 2022, 5:00PM PDT: World Premiere of Seizing Hope: High Tech Journeys in Pediatric Epilepsy (Link)
- Thu, Sep 1, 2022, 6:30PM PDT: Virtual film screening event co-hosted by the BC Epilepsy Society.
- Wed, Sep 7, 2022, 4:00PM: Virtual film screening event co-hosted by Neuroethics Café, Maastricht University
- Wed, Sep 21, 2022, 6:30PM: Special film screening event with Clinical Neuroethics Film Nights, UBC